Bioinformatics and genetic privacy: the impact of the Personal Data Protection Act 2010

Bioinformatics refers to the practise of creation and management of genetic data using computational and statistical techniques. In Malaysia, data obtained from genomic studies, particularly for the purpose of disease identification produces a tremendous amount of information related to molecular bi...

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Main Author: Abdul Ghani Azmi, Ida Madieha
Format: Article
Language:English
Published: Elsevier Advanced Technology 2011
Subjects:
Online Access:http://irep.iium.edu.my/2331/
http://irep.iium.edu.my/2331/1/Bioinformatics_and_genetic_privacy-_the_impact_of_the_Personal_Data_Protection_Act_2010.pdf
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author Abdul Ghani Azmi, Ida Madieha
author_facet Abdul Ghani Azmi, Ida Madieha
author_sort Abdul Ghani Azmi, Ida Madieha
building IIUM Repository
collection Online Access
description Bioinformatics refers to the practise of creation and management of genetic data using computational and statistical techniques. In Malaysia, data obtained from genomic studies, particularly for the purpose of disease identification produces a tremendous amount of information related to molecular biology. These data are created from DNA samples obtained from diagnostic and research purposes in genomic research institutes in Malaysia. As these data are processed, stored, managed and profiled using computer applications, an issue arises as to whether the principles of personal data privacy would be applicable to these activities. This paper commences with an illustration of the salient features of the Personal Data Protection Act 2010. The second part analyses the impact of the newly passed Personal Data Protection Act 2010 on the collection of DNA sample, the processing of data obtained from it and the profiling of such data. The third part of the paper considers whether the various personal data protection principles are applicable to the act of DNA profiling and the creation of bioinformatics.
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spelling iium-23312023-03-28T02:58:37Z http://irep.iium.edu.my/2331/ Bioinformatics and genetic privacy: the impact of the Personal Data Protection Act 2010 Abdul Ghani Azmi, Ida Madieha K Law (General) Bioinformatics refers to the practise of creation and management of genetic data using computational and statistical techniques. In Malaysia, data obtained from genomic studies, particularly for the purpose of disease identification produces a tremendous amount of information related to molecular biology. These data are created from DNA samples obtained from diagnostic and research purposes in genomic research institutes in Malaysia. As these data are processed, stored, managed and profiled using computer applications, an issue arises as to whether the principles of personal data privacy would be applicable to these activities. This paper commences with an illustration of the salient features of the Personal Data Protection Act 2010. The second part analyses the impact of the newly passed Personal Data Protection Act 2010 on the collection of DNA sample, the processing of data obtained from it and the profiling of such data. The third part of the paper considers whether the various personal data protection principles are applicable to the act of DNA profiling and the creation of bioinformatics. Elsevier Advanced Technology 2011-07-22 Article PeerReviewed application/pdf en http://irep.iium.edu.my/2331/1/Bioinformatics_and_genetic_privacy-_the_impact_of_the_Personal_Data_Protection_Act_2010.pdf Abdul Ghani Azmi, Ida Madieha (2011) Bioinformatics and genetic privacy: the impact of the Personal Data Protection Act 2010. Computer Law and Security Report, 27 (4). pp. 394-401. ISSN 0267-3649 http://www.sciencedirect.com/science/article/pii/S0267364911000902 10.1016/j.clsr.2011.05.008
spellingShingle K Law (General)
Abdul Ghani Azmi, Ida Madieha
Bioinformatics and genetic privacy: the impact of the Personal Data Protection Act 2010
title Bioinformatics and genetic privacy: the impact of the Personal Data Protection Act 2010
title_full Bioinformatics and genetic privacy: the impact of the Personal Data Protection Act 2010
title_fullStr Bioinformatics and genetic privacy: the impact of the Personal Data Protection Act 2010
title_full_unstemmed Bioinformatics and genetic privacy: the impact of the Personal Data Protection Act 2010
title_short Bioinformatics and genetic privacy: the impact of the Personal Data Protection Act 2010
title_sort bioinformatics and genetic privacy: the impact of the personal data protection act 2010
topic K Law (General)
url http://irep.iium.edu.my/2331/
http://irep.iium.edu.my/2331/
http://irep.iium.edu.my/2331/
http://irep.iium.edu.my/2331/1/Bioinformatics_and_genetic_privacy-_the_impact_of_the_Personal_Data_Protection_Act_2010.pdf