Impact of ethnicity on parental health outcomes and experiences after paediatric intensive care unit discharge: a mixed-methods systematic review
The impact of ethnicity on parental health outcome after paediatric intensive care unit (PICU) discharge remains unclear. Thirteen medical and healthcare databases, unpublished studies and grey literature were searched up to November 5, 2021. We performed a mixed-method systematic review to understa...
| Main Authors: | , , , , |
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| Format: | Journal Article |
| Language: | English |
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SPRINGER
2022
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| Online Access: | http://hdl.handle.net/20.500.11937/94028 |
| _version_ | 1848765833129492480 |
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| author | Poh, P.F. Carey, M.C. Lee, J.H. Manning, J.C. Latour, Jos |
| author_facet | Poh, P.F. Carey, M.C. Lee, J.H. Manning, J.C. Latour, Jos |
| author_sort | Poh, P.F. |
| building | Curtin Institutional Repository |
| collection | Online Access |
| description | The impact of ethnicity on parental health outcome after paediatric intensive care unit (PICU) discharge remains unclear. Thirteen medical and healthcare databases, unpublished studies and grey literature were searched up to November 5, 2021. We performed a mixed-method systematic review to understand the impact of ethnicity on parental outcomes after PICU discharge, including eight quantitative and eight qualitative studies. Among 1529 parents included, 1064 (72%) were White. Higher prevalence of post-traumatic stress disorder was seen in Black parents (17% White vs 36% Black, p =.03). Latino ethnicity was found to have protective effect against anxiety as compared to White parents (coefficient − 4.27, p <.001). A total of 91 findings were aggregated into 14 categories, and the five synthesized themes from the eight qualitative studies were long-term psychological impact after PICU, use of coping strategies, challenges of re-integration, changes in relationships and the utilization of formal support services and resources. Mixed-method synthesis found that parents of ethnic minority group were underrepresented (18%) and had higher attrition rates in a longitudinal study as compared to White parents following childhood critical illness. Conclusion: There are significant gaps in evidence related to the impact of ethnicity on long-term parental health outcomes after PICU discharge. Ethnic diversity and inclusiveness in long-term PICU research may aid understanding of the parental experiences and outcomes to close the gap in health disparity. |
| first_indexed | 2025-11-14T11:41:32Z |
| format | Journal Article |
| id | curtin-20.500.11937-94028 |
| institution | Curtin University Malaysia |
| institution_category | Local University |
| language | English |
| last_indexed | 2025-11-14T11:41:32Z |
| publishDate | 2022 |
| publisher | SPRINGER |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | curtin-20.500.11937-940282024-01-24T05:29:20Z Impact of ethnicity on parental health outcomes and experiences after paediatric intensive care unit discharge: a mixed-methods systematic review Poh, P.F. Carey, M.C. Lee, J.H. Manning, J.C. Latour, Jos Science & Technology Life Sciences & Biomedicine Pediatrics Ethnicity Paediatric intensive care Parental outcomes Race POSTTRAUMATIC-STRESS-DISORDER CHILDREN DISPARITIES MODERATE Ethnicity Paediatric intensive care Parental outcomes Race Child Ethnicity Humans Intensive Care Units, Pediatric Longitudinal Studies Minority Groups Outcome Assessment, Health Care Parents Patient Discharge Humans Patient Discharge Longitudinal Studies Parents Minority Groups Child Intensive Care Units, Pediatric Outcome Assessment, Health Care Ethnicity The impact of ethnicity on parental health outcome after paediatric intensive care unit (PICU) discharge remains unclear. Thirteen medical and healthcare databases, unpublished studies and grey literature were searched up to November 5, 2021. We performed a mixed-method systematic review to understand the impact of ethnicity on parental outcomes after PICU discharge, including eight quantitative and eight qualitative studies. Among 1529 parents included, 1064 (72%) were White. Higher prevalence of post-traumatic stress disorder was seen in Black parents (17% White vs 36% Black, p =.03). Latino ethnicity was found to have protective effect against anxiety as compared to White parents (coefficient − 4.27, p <.001). A total of 91 findings were aggregated into 14 categories, and the five synthesized themes from the eight qualitative studies were long-term psychological impact after PICU, use of coping strategies, challenges of re-integration, changes in relationships and the utilization of formal support services and resources. Mixed-method synthesis found that parents of ethnic minority group were underrepresented (18%) and had higher attrition rates in a longitudinal study as compared to White parents following childhood critical illness. Conclusion: There are significant gaps in evidence related to the impact of ethnicity on long-term parental health outcomes after PICU discharge. Ethnic diversity and inclusiveness in long-term PICU research may aid understanding of the parental experiences and outcomes to close the gap in health disparity. 2022 Journal Article http://hdl.handle.net/20.500.11937/94028 10.1007/s00431-022-04595-5 English SPRINGER fulltext |
| spellingShingle | Science & Technology Life Sciences & Biomedicine Pediatrics Ethnicity Paediatric intensive care Parental outcomes Race POSTTRAUMATIC-STRESS-DISORDER CHILDREN DISPARITIES MODERATE Ethnicity Paediatric intensive care Parental outcomes Race Child Ethnicity Humans Intensive Care Units, Pediatric Longitudinal Studies Minority Groups Outcome Assessment, Health Care Parents Patient Discharge Humans Patient Discharge Longitudinal Studies Parents Minority Groups Child Intensive Care Units, Pediatric Outcome Assessment, Health Care Ethnicity Poh, P.F. Carey, M.C. Lee, J.H. Manning, J.C. Latour, Jos Impact of ethnicity on parental health outcomes and experiences after paediatric intensive care unit discharge: a mixed-methods systematic review |
| title | Impact of ethnicity on parental health outcomes and experiences after paediatric intensive care unit discharge: a mixed-methods systematic review |
| title_full | Impact of ethnicity on parental health outcomes and experiences after paediatric intensive care unit discharge: a mixed-methods systematic review |
| title_fullStr | Impact of ethnicity on parental health outcomes and experiences after paediatric intensive care unit discharge: a mixed-methods systematic review |
| title_full_unstemmed | Impact of ethnicity on parental health outcomes and experiences after paediatric intensive care unit discharge: a mixed-methods systematic review |
| title_short | Impact of ethnicity on parental health outcomes and experiences after paediatric intensive care unit discharge: a mixed-methods systematic review |
| title_sort | impact of ethnicity on parental health outcomes and experiences after paediatric intensive care unit discharge: a mixed-methods systematic review |
| topic | Science & Technology Life Sciences & Biomedicine Pediatrics Ethnicity Paediatric intensive care Parental outcomes Race POSTTRAUMATIC-STRESS-DISORDER CHILDREN DISPARITIES MODERATE Ethnicity Paediatric intensive care Parental outcomes Race Child Ethnicity Humans Intensive Care Units, Pediatric Longitudinal Studies Minority Groups Outcome Assessment, Health Care Parents Patient Discharge Humans Patient Discharge Longitudinal Studies Parents Minority Groups Child Intensive Care Units, Pediatric Outcome Assessment, Health Care Ethnicity |
| url | http://hdl.handle.net/20.500.11937/94028 |