The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children

Caregivers of children with neurodiverse needs are known to experience challenges and hardship due to the increased needs of the child and the lack of support available. This study aimed to explore the support needs and well-being of caregivers of children with neurodiverse needs in Australia. Sixty...

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Main Authors: D’Arcy, Emily, Burnett, Tayah, Capstick, Emily, Elder, Catherine, Slee, Olivia, Girdler, Sonya, Scott, Melissa, Milbourn, Ben
Format: Journal Article
Language:English
Published: 2023
Subjects:
Online Access:http://hdl.handle.net/20.500.11937/92788
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author D’Arcy, Emily
Burnett, Tayah
Capstick, Emily
Elder, Catherine
Slee, Olivia
Girdler, Sonya
Scott, Melissa
Milbourn, Ben
author_facet D’Arcy, Emily
Burnett, Tayah
Capstick, Emily
Elder, Catherine
Slee, Olivia
Girdler, Sonya
Scott, Melissa
Milbourn, Ben
author_sort D’Arcy, Emily
building Curtin Institutional Repository
collection Online Access
description Caregivers of children with neurodiverse needs are known to experience challenges and hardship due to the increased needs of the child and the lack of support available. This study aimed to explore the support needs and well-being of caregivers of children with neurodiverse needs in Australia. Sixty-six caregivers participated in an online survey asking questions about support needs. The results highlighted five main themes that caregivers commonly experienced including: barriers to community engagement, impact on close relationships, negative impact on mental health and identity, financial hardship, and identified support needs. Findings identified multiple unmet needs existing amongst caregivers and further emphasises the importance of addressing these needs to improve the quality of life of caregivers of children with neurodiverse needs.
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institution Curtin University Malaysia
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spelling curtin-20.500.11937-927882023-07-25T04:21:59Z The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children D’Arcy, Emily Burnett, Tayah Capstick, Emily Elder, Catherine Slee, Olivia Girdler, Sonya Scott, Melissa Milbourn, Ben Caregiver Mental Health Neurodivergent Support Needs Well-being Caregivers of children with neurodiverse needs are known to experience challenges and hardship due to the increased needs of the child and the lack of support available. This study aimed to explore the support needs and well-being of caregivers of children with neurodiverse needs in Australia. Sixty-six caregivers participated in an online survey asking questions about support needs. The results highlighted five main themes that caregivers commonly experienced including: barriers to community engagement, impact on close relationships, negative impact on mental health and identity, financial hardship, and identified support needs. Findings identified multiple unmet needs existing amongst caregivers and further emphasises the importance of addressing these needs to improve the quality of life of caregivers of children with neurodiverse needs. 2023 Journal Article http://hdl.handle.net/20.500.11937/92788 10.1007/s10803-023-05910-1 eng http://creativecommons.org/licenses/by/4.0/ fulltext
spellingShingle Caregiver
Mental Health
Neurodivergent
Support Needs
Well-being
D’Arcy, Emily
Burnett, Tayah
Capstick, Emily
Elder, Catherine
Slee, Olivia
Girdler, Sonya
Scott, Melissa
Milbourn, Ben
The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title_full The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title_fullStr The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title_full_unstemmed The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title_short The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
title_sort well-being and support needs of australian caregivers of neurodiverse children
topic Caregiver
Mental Health
Neurodivergent
Support Needs
Well-being
url http://hdl.handle.net/20.500.11937/92788