Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability

OBJECTIVE: To assess responsiveness and reproducibility using the estimates of test-retest reliability for the Quality of Life Inventory-Disability (QI-Disability), accounting for changes in child health and parental stress. METHOD: Quality of Life Inventory-Disability was administered twice ove...

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Main Authors: Jacoby, P., Epstein, A., Kim, R., Murphy, N., Leonard, H., Williams, K., Reddihough, D., Whitehouse, A., Downs, Jennepher
Format: Journal Article
Language:English
Published: LIPPINCOTT WILLIAMS & WILKINS 2020
Subjects:
Online Access:http://purl.org/au-research/grants/nhmrc/1103745
http://hdl.handle.net/20.500.11937/86897
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author Jacoby, P.
Epstein, A.
Kim, R.
Murphy, N.
Leonard, H.
Williams, K.
Reddihough, D.
Whitehouse, A.
Downs, Jennepher
author_facet Jacoby, P.
Epstein, A.
Kim, R.
Murphy, N.
Leonard, H.
Williams, K.
Reddihough, D.
Whitehouse, A.
Downs, Jennepher
author_sort Jacoby, P.
building Curtin Institutional Repository
collection Online Access
description OBJECTIVE: To assess responsiveness and reproducibility using the estimates of test-retest reliability for the Quality of Life Inventory-Disability (QI-Disability), accounting for changes in child health and parental stress. METHOD: Quality of Life Inventory-Disability was administered twice over a 1-month period to a sample of 55 primary caregivers of children (aged 5-19 years) with intellectual disability. Caregivers also reported their child's physical and mental health and completed a 4-item Perceived Stress Scale to assess parental stress. Fixed-effects linear regression models examined responsiveness of QI-Disability to the reported change in child health and parental stress. Reliability was then assessed using intraclass correlations (ICCs) calculated from QI-Disability scores adjusted for changes in child health and parental stress. RESULTS: Five of 7 unadjusted ICC values indicated at least moderate agreement (>0.70), and 2 values indicated fair agreement. After accounting for changes in child health and parental stress, adjusted ICC values showed substantial agreement for the total QI-Disability score and 4 domain scores (adjusted ICC ≥ 0.80). Adjusted ICC scores indicated moderate agreement for the Physical Health domain (adjusted ICC = 0.68) and fair agreement for the Positive Emotions domain (adjusted ICC = 0.58). Improvements in a child's physical health rating were associated with higher total, Physical Health, and Positive Emotion domain scores, whereas improvements in mental health were associated with higher total and Negative Emotions domain scores, indicating better quality of life. Changes in parental stress did not have a statistically significant relationship with quality of life. CONCLUSION: Satisfactory test-retest reliability was shown. Preliminary evidence indicates that QI-Disability is responsive to changes in child health, but not to differing levels of parental stress.
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spelling curtin-20.500.11937-868972022-01-05T05:22:22Z Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability Jacoby, P. Epstein, A. Kim, R. Murphy, N. Leonard, H. Williams, K. Reddihough, D. Whitehouse, A. Downs, Jennepher Science & Technology Social Sciences Life Sciences & Biomedicine Behavioral Sciences Psychology, Developmental Pediatrics Psychology quality of life intellectual disability child adolescence reliability test-retest AUTISM SPECTRUM DISORDERS CEREBRAL-PALSY CHRONIC STRESS HEALTH ADOLESCENTS RESPONSIVENESS VALIDITY PARENTS PEOPLE OBJECTIVE: To assess responsiveness and reproducibility using the estimates of test-retest reliability for the Quality of Life Inventory-Disability (QI-Disability), accounting for changes in child health and parental stress. METHOD: Quality of Life Inventory-Disability was administered twice over a 1-month period to a sample of 55 primary caregivers of children (aged 5-19 years) with intellectual disability. Caregivers also reported their child's physical and mental health and completed a 4-item Perceived Stress Scale to assess parental stress. Fixed-effects linear regression models examined responsiveness of QI-Disability to the reported change in child health and parental stress. Reliability was then assessed using intraclass correlations (ICCs) calculated from QI-Disability scores adjusted for changes in child health and parental stress. RESULTS: Five of 7 unadjusted ICC values indicated at least moderate agreement (>0.70), and 2 values indicated fair agreement. After accounting for changes in child health and parental stress, adjusted ICC values showed substantial agreement for the total QI-Disability score and 4 domain scores (adjusted ICC ≥ 0.80). Adjusted ICC scores indicated moderate agreement for the Physical Health domain (adjusted ICC = 0.68) and fair agreement for the Positive Emotions domain (adjusted ICC = 0.58). Improvements in a child's physical health rating were associated with higher total, Physical Health, and Positive Emotion domain scores, whereas improvements in mental health were associated with higher total and Negative Emotions domain scores, indicating better quality of life. Changes in parental stress did not have a statistically significant relationship with quality of life. CONCLUSION: Satisfactory test-retest reliability was shown. Preliminary evidence indicates that QI-Disability is responsive to changes in child health, but not to differing levels of parental stress. 2020 Journal Article http://hdl.handle.net/20.500.11937/86897 10.1097/DBP.0000000000000815 English http://purl.org/au-research/grants/nhmrc/1103745 http://purl.org/au-research/grants/nhmrc/1077966 http://purl.org/au-research/grants/nhmrc/1117105 LIPPINCOTT WILLIAMS & WILKINS fulltext
spellingShingle Science & Technology
Social Sciences
Life Sciences & Biomedicine
Behavioral Sciences
Psychology, Developmental
Pediatrics
Psychology
quality of life
intellectual disability
child
adolescence
reliability
test-retest
AUTISM SPECTRUM DISORDERS
CEREBRAL-PALSY
CHRONIC STRESS
HEALTH
ADOLESCENTS
RESPONSIVENESS
VALIDITY
PARENTS
PEOPLE
Jacoby, P.
Epstein, A.
Kim, R.
Murphy, N.
Leonard, H.
Williams, K.
Reddihough, D.
Whitehouse, A.
Downs, Jennepher
Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability
title Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability
title_full Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability
title_fullStr Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability
title_full_unstemmed Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability
title_short Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability
title_sort reliability of the quality of life inventory-disability measure in children with intellectual disability
topic Science & Technology
Social Sciences
Life Sciences & Biomedicine
Behavioral Sciences
Psychology, Developmental
Pediatrics
Psychology
quality of life
intellectual disability
child
adolescence
reliability
test-retest
AUTISM SPECTRUM DISORDERS
CEREBRAL-PALSY
CHRONIC STRESS
HEALTH
ADOLESCENTS
RESPONSIVENESS
VALIDITY
PARENTS
PEOPLE
url http://purl.org/au-research/grants/nhmrc/1103745
http://purl.org/au-research/grants/nhmrc/1103745
http://purl.org/au-research/grants/nhmrc/1103745
http://hdl.handle.net/20.500.11937/86897