Using directed-content analysis to identify a framework for understanding quality of life in adults with Rett syndrome

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Using directed-content analysis to identify a framework for understanding quality of life in adults with Rett syndrome

Purpose: Rett syndrome (RTT) is a rare neurodevelopmental disorder mainly affecting females and is caused by a mutation in the MECP2 gene. Recent research identified the domains of quality of life (QOL) important for children with RTT but there has been no investigation of domains important for adul...

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Bibliographic Details
Main Authors:	Strugnell, A., Leonard, H., Epstein, A., Downs, Jennepher
Format:	Journal Article
Language:	English
Published:	TAYLOR & FRANCIS LTD 2019
Subjects:	Science & Technology Life Sciences & Biomedicine Rehabilitation Rett syndrome quality of life qualitative research neurodevelopmental disability CEREBRAL-PALSY CHILDREN ADOLESCENTS WOMEN DISABILITY SEVERITY CRITERIA GIRLS MECP2 CARE
Online Access:	http://hdl.handle.net/20.500.11937/80098

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