Using directed-content analysis to identify a framework for understanding quality of life in adults with Rett syndrome

Using directed-content analysis to identify a framework for understanding quality of life in adults with Rett syndrome

Purpose: Rett syndrome (RTT) is a rare neurodevelopmental disorder mainly affecting females and is caused by a mutation in the MECP2 gene. Recent research identified the domains of quality of life (QOL) important for children with RTT but there has been no investigation of domains important for adul...

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Bibliographic Details
Main Authors: Strugnell, A., Leonard, H., Epstein, A., Downs, Jennepher
Format: Journal Article
Language:English
Published: TAYLOR & FRANCIS LTD 2019
Subjects:
Science & Technology
Life Sciences & Biomedicine
Rehabilitation
Rett syndrome
quality of life
qualitative research
neurodevelopmental disability
CEREBRAL-PALSY
CHILDREN
ADOLESCENTS
WOMEN
DISABILITY
SEVERITY
CRITERIA
GIRLS
MECP2
CARE
Online Access:http://hdl.handle.net/20.500.11937/80098

Internet

http://hdl.handle.net/20.500.11937/80098

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