Needs of people with dementia and their spousal carers: A study of those living in the community

© 2019 AJA Inc. Objective: To identify care and support needs, as reported by people with dementia and their spousal carers living in the community in metropolitan Western Australia. Methods: An interpretive description approach was utilised. Semi-structured interviews were conducted with 10 dyads o...

Full description

Bibliographic Details
Main Authors: Morrisby, Claire, Joosten, Annette, Ciccarelli, Marina
Format: Journal Article
Published: Wiley-Blackwell Publishing Asia 2019
Online Access:http://hdl.handle.net/20.500.11937/73953
_version_ 1848763141356257280
author Morrisby, Claire
Joosten, Annette
Ciccarelli, Marina
author_facet Morrisby, Claire
Joosten, Annette
Ciccarelli, Marina
author_sort Morrisby, Claire
building Curtin Institutional Repository
collection Online Access
description © 2019 AJA Inc. Objective: To identify care and support needs, as reported by people with dementia and their spousal carers living in the community in metropolitan Western Australia. Methods: An interpretive description approach was utilised. Semi-structured interviews were conducted with 10 dyads of spousal carers and people with dementia. Comparative analysis was used to develop themes regarding need, which were reviewed using two focus groups of spousal carers. Results: Three major themes were developed through analysis of data from the interviews and were refined by the focus groups: (a) environmental enablers to support care; (b) strong caring relationships; and (c) adaptation of daily life roles. Conclusions: As dementia progresses, continued support to maintain participation in meaningful activity is needed. Strong caring relationships, knowledge and an understanding of dementia among health professionals, service providers and family members were key to maintaining support for the needs of people with dementia and their spousal carers.
first_indexed 2025-11-14T10:58:44Z
format Journal Article
id curtin-20.500.11937-73953
institution Curtin University Malaysia
institution_category Local University
last_indexed 2025-11-14T10:58:44Z
publishDate 2019
publisher Wiley-Blackwell Publishing Asia
recordtype eprints
repository_type Digital Repository
spelling curtin-20.500.11937-739532019-02-19T04:25:59Z Needs of people with dementia and their spousal carers: A study of those living in the community Morrisby, Claire Joosten, Annette Ciccarelli, Marina © 2019 AJA Inc. Objective: To identify care and support needs, as reported by people with dementia and their spousal carers living in the community in metropolitan Western Australia. Methods: An interpretive description approach was utilised. Semi-structured interviews were conducted with 10 dyads of spousal carers and people with dementia. Comparative analysis was used to develop themes regarding need, which were reviewed using two focus groups of spousal carers. Results: Three major themes were developed through analysis of data from the interviews and were refined by the focus groups: (a) environmental enablers to support care; (b) strong caring relationships; and (c) adaptation of daily life roles. Conclusions: As dementia progresses, continued support to maintain participation in meaningful activity is needed. Strong caring relationships, knowledge and an understanding of dementia among health professionals, service providers and family members were key to maintaining support for the needs of people with dementia and their spousal carers. 2019 Journal Article http://hdl.handle.net/20.500.11937/73953 10.1111/ajag.12609 Wiley-Blackwell Publishing Asia restricted
spellingShingle Morrisby, Claire
Joosten, Annette
Ciccarelli, Marina
Needs of people with dementia and their spousal carers: A study of those living in the community
title Needs of people with dementia and their spousal carers: A study of those living in the community
title_full Needs of people with dementia and their spousal carers: A study of those living in the community
title_fullStr Needs of people with dementia and their spousal carers: A study of those living in the community
title_full_unstemmed Needs of people with dementia and their spousal carers: A study of those living in the community
title_short Needs of people with dementia and their spousal carers: A study of those living in the community
title_sort needs of people with dementia and their spousal carers: a study of those living in the community
url http://hdl.handle.net/20.500.11937/73953