Heterotopic Ossification in adults following a burn: A phenomenological analysis

© 2017 Elsevier Ltd and ISBI Heterotopic Ossification (HO) is a rare but severely debilitating complication after a burn. Despite there being literature of varying quality explaining the postulated pathological process, risk factors and treatment for HO, the individual experiences of adults diagnose...

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Main Authors: Foster, N., Kornhaber, R., McGarry, Sarah, Wood, Fiona, Edgar, Dale
Format: Journal Article
Published: Pergamon Press 2017
Online Access:http://hdl.handle.net/20.500.11937/73227
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author Foster, N.
Kornhaber, R.
McGarry, Sarah
Wood, Fiona
Edgar, Dale
author_facet Foster, N.
Kornhaber, R.
McGarry, Sarah
Wood, Fiona
Edgar, Dale
author_sort Foster, N.
building Curtin Institutional Repository
collection Online Access
description © 2017 Elsevier Ltd and ISBI Heterotopic Ossification (HO) is a rare but severely debilitating complication after a burn. Despite there being literature of varying quality explaining the postulated pathological process, risk factors and treatment for HO, the individual experiences of adults diagnosed with HO following a burn, remains unreported. This study sought to explore and describe burn survivors’ experiences of HO to gain a greater understanding of the clinical needs for this unique patient population. A phenomenological inquiry of five men and one woman selected through purposeful sampling collected in-depth interviews analysed using Colaizzi's method of data analysis. Five emergent themes: (1) Early signs and symptoms, (2) Impact on the rehabilitation journey, (3) The role of the health care professionals (4) Loss of independence and an increased reliance on others and, (5) Learning to live with it: uncertainty, hope and adaptation. Eleven cluster themes were identified, highlighting the meaning of each emergent theme. These findings describe the significant impact the unique symptomology of HO had on the physical and psychosocial functioning of participants throughout the rehabilitation journey. Central to engagement in rehabilitation, is the participants’ desire for autonomy particularly in the domains of living independently and community re-integration.
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spelling curtin-20.500.11937-732272018-12-13T09:35:31Z Heterotopic Ossification in adults following a burn: A phenomenological analysis Foster, N. Kornhaber, R. McGarry, Sarah Wood, Fiona Edgar, Dale © 2017 Elsevier Ltd and ISBI Heterotopic Ossification (HO) is a rare but severely debilitating complication after a burn. Despite there being literature of varying quality explaining the postulated pathological process, risk factors and treatment for HO, the individual experiences of adults diagnosed with HO following a burn, remains unreported. This study sought to explore and describe burn survivors’ experiences of HO to gain a greater understanding of the clinical needs for this unique patient population. A phenomenological inquiry of five men and one woman selected through purposeful sampling collected in-depth interviews analysed using Colaizzi's method of data analysis. Five emergent themes: (1) Early signs and symptoms, (2) Impact on the rehabilitation journey, (3) The role of the health care professionals (4) Loss of independence and an increased reliance on others and, (5) Learning to live with it: uncertainty, hope and adaptation. Eleven cluster themes were identified, highlighting the meaning of each emergent theme. These findings describe the significant impact the unique symptomology of HO had on the physical and psychosocial functioning of participants throughout the rehabilitation journey. Central to engagement in rehabilitation, is the participants’ desire for autonomy particularly in the domains of living independently and community re-integration. 2017 Journal Article http://hdl.handle.net/20.500.11937/73227 10.1016/j.burns.2017.03.001 Pergamon Press restricted
spellingShingle Foster, N.
Kornhaber, R.
McGarry, Sarah
Wood, Fiona
Edgar, Dale
Heterotopic Ossification in adults following a burn: A phenomenological analysis
title Heterotopic Ossification in adults following a burn: A phenomenological analysis
title_full Heterotopic Ossification in adults following a burn: A phenomenological analysis
title_fullStr Heterotopic Ossification in adults following a burn: A phenomenological analysis
title_full_unstemmed Heterotopic Ossification in adults following a burn: A phenomenological analysis
title_short Heterotopic Ossification in adults following a burn: A phenomenological analysis
title_sort heterotopic ossification in adults following a burn: a phenomenological analysis
url http://hdl.handle.net/20.500.11937/73227