Adult-Specific Life Outcomes of Cleft Lip and Palate in a Western Australian Cohort

BACKGROUND: People with a cleft of the lip and/or palate (CL/P) differ from their peers due to their facial appearance, hearing and speech difficulties, and the significant time spent attending appointments and recovering from surgical interventions. These differences may impact life outcomes includ...

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Main Authors: Nicholls, W., Harper, C., Robinson, S., Persson, M., Selvey, Linda
Format: Journal Article
Published: ALLIANCE COMMUNICATIONS GROUP DIVISION ALLEN PRESS 2018
Online Access:http://hdl.handle.net/20.500.11937/71664
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author Nicholls, W.
Harper, C.
Robinson, S.
Persson, M.
Selvey, Linda
author_facet Nicholls, W.
Harper, C.
Robinson, S.
Persson, M.
Selvey, Linda
author_sort Nicholls, W.
building Curtin Institutional Repository
collection Online Access
description BACKGROUND: People with a cleft of the lip and/or palate (CL/P) differ from their peers due to their facial appearance, hearing and speech difficulties, and the significant time spent attending appointments and recovering from surgical interventions. These differences may impact life outcomes including occupation, income, education, relationships, psychosocial health issues, and lifestyle choices.METHODOLOGY: A self-administered questionnaire was posted to 338 former and current patients of the Cleft Lip and Palate Unit of Princess Margaret Hospital (PMH), Perth, Western Australia.RESULTS: Completed questionnaires were returned by 158 former and current patients. In comparison to the Australian Bureau of Statistics, study participants attained equivalent highest education levels, full-time annual income levels, occupational categories, employment rates, and home ownership levels. They did not marry later and demonstrated positive health-related lifestyle behaviors. However independent living was significantly delayed, and the number of romantic relationships, marriages, and children was lower, with separation/divorce rates also being lower. A key finding was that 78% of participants self-reported that they experienced at least 1 psychosocial health issue and more than half experienced anxiety and/or depression.CONCLUSION: When comparing the sociological outcomes for the study participants, the psychosocial outcomes were the areas of most concern. Further investigation is required to determine the causes for the high self-reported rates of anxiety and/or depression found in this study.
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spelling curtin-20.500.11937-716642018-12-13T09:32:59Z Adult-Specific Life Outcomes of Cleft Lip and Palate in a Western Australian Cohort Nicholls, W. Harper, C. Robinson, S. Persson, M. Selvey, Linda BACKGROUND: People with a cleft of the lip and/or palate (CL/P) differ from their peers due to their facial appearance, hearing and speech difficulties, and the significant time spent attending appointments and recovering from surgical interventions. These differences may impact life outcomes including occupation, income, education, relationships, psychosocial health issues, and lifestyle choices.METHODOLOGY: A self-administered questionnaire was posted to 338 former and current patients of the Cleft Lip and Palate Unit of Princess Margaret Hospital (PMH), Perth, Western Australia.RESULTS: Completed questionnaires were returned by 158 former and current patients. In comparison to the Australian Bureau of Statistics, study participants attained equivalent highest education levels, full-time annual income levels, occupational categories, employment rates, and home ownership levels. They did not marry later and demonstrated positive health-related lifestyle behaviors. However independent living was significantly delayed, and the number of romantic relationships, marriages, and children was lower, with separation/divorce rates also being lower. A key finding was that 78% of participants self-reported that they experienced at least 1 psychosocial health issue and more than half experienced anxiety and/or depression.CONCLUSION: When comparing the sociological outcomes for the study participants, the psychosocial outcomes were the areas of most concern. Further investigation is required to determine the causes for the high self-reported rates of anxiety and/or depression found in this study. 2018 Journal Article http://hdl.handle.net/20.500.11937/71664 10.1177/1055665618768540 ALLIANCE COMMUNICATIONS GROUP DIVISION ALLEN PRESS restricted
spellingShingle Nicholls, W.
Harper, C.
Robinson, S.
Persson, M.
Selvey, Linda
Adult-Specific Life Outcomes of Cleft Lip and Palate in a Western Australian Cohort
title Adult-Specific Life Outcomes of Cleft Lip and Palate in a Western Australian Cohort
title_full Adult-Specific Life Outcomes of Cleft Lip and Palate in a Western Australian Cohort
title_fullStr Adult-Specific Life Outcomes of Cleft Lip and Palate in a Western Australian Cohort
title_full_unstemmed Adult-Specific Life Outcomes of Cleft Lip and Palate in a Western Australian Cohort
title_short Adult-Specific Life Outcomes of Cleft Lip and Palate in a Western Australian Cohort
title_sort adult-specific life outcomes of cleft lip and palate in a western australian cohort
url http://hdl.handle.net/20.500.11937/71664