A qualitative interview study of people living with well-controlled Type 1 diabetes

© 2018 Informa UK Limited, trading as Taylor & Francis Group. Objective: While many people with Type 1 diabetes find it difficult to achieve recommended blood glucose levels, a minority do achieve good control. Our study was conceived by patient and public (PP) partners and sought to learn abo...

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Main Authors: Smith, D., Donnelly, P., Howe, J., Mumford, T., Campbell, Alan, Ruddock, A., Tierney, S., Wearden, A.
Format: Journal Article
Published: Routledge 2018
Online Access:http://hdl.handle.net/20.500.11937/71370
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author Smith, D.
Donnelly, P.
Howe, J.
Mumford, T.
Campbell, Alan
Ruddock, A.
Tierney, S.
Wearden, A.
author_facet Smith, D.
Donnelly, P.
Howe, J.
Mumford, T.
Campbell, Alan
Ruddock, A.
Tierney, S.
Wearden, A.
author_sort Smith, D.
building Curtin Institutional Repository
collection Online Access
description © 2018 Informa UK Limited, trading as Taylor & Francis Group. Objective: While many people with Type 1 diabetes find it difficult to achieve recommended blood glucose levels, a minority do achieve good control. Our study was conceived by patient and public (PP) partners and sought to learn about experiences of people living with well-controlled diabetes. Design: A collaboration between academic health psychologists and five PP partners with experience of diabetes, who were trained to conduct and analyse semi-structured interviews. Fifteen adults with well-controlled Type 1 diabetes were interviewed about the history of their diabetes and their current self-management practices. Interviews were subjected to inductive thematic analysis. Results: Eight sub-themes were arranged into two overarching themes, ‘facing up to diabetes’ and ‘balance leads to freedom’. Participants described a process of acceptance and mastery of diabetes, and talked about how they gained a deeper understanding of bodily processes through trial and error. Conclusion: Based on the experiences of people with well-controlled Type 1 diabetes, interventions for people with this condition should encourage acceptance of the diagnosis and increasing confidence to experiment with behaviours (trial and error) to encourage ‘mastery’ of self-management. The research collaboration described here is an example of best practice for future researchers wanting to actively engage PP partners.
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spelling curtin-20.500.11937-713702018-12-13T09:33:29Z A qualitative interview study of people living with well-controlled Type 1 diabetes Smith, D. Donnelly, P. Howe, J. Mumford, T. Campbell, Alan Ruddock, A. Tierney, S. Wearden, A. © 2018 Informa UK Limited, trading as Taylor & Francis Group. Objective: While many people with Type 1 diabetes find it difficult to achieve recommended blood glucose levels, a minority do achieve good control. Our study was conceived by patient and public (PP) partners and sought to learn about experiences of people living with well-controlled diabetes. Design: A collaboration between academic health psychologists and five PP partners with experience of diabetes, who were trained to conduct and analyse semi-structured interviews. Fifteen adults with well-controlled Type 1 diabetes were interviewed about the history of their diabetes and their current self-management practices. Interviews were subjected to inductive thematic analysis. Results: Eight sub-themes were arranged into two overarching themes, ‘facing up to diabetes’ and ‘balance leads to freedom’. Participants described a process of acceptance and mastery of diabetes, and talked about how they gained a deeper understanding of bodily processes through trial and error. Conclusion: Based on the experiences of people with well-controlled Type 1 diabetes, interventions for people with this condition should encourage acceptance of the diagnosis and increasing confidence to experiment with behaviours (trial and error) to encourage ‘mastery’ of self-management. The research collaboration described here is an example of best practice for future researchers wanting to actively engage PP partners. 2018 Journal Article http://hdl.handle.net/20.500.11937/71370 10.1080/08870446.2017.1423313 Routledge restricted
spellingShingle Smith, D.
Donnelly, P.
Howe, J.
Mumford, T.
Campbell, Alan
Ruddock, A.
Tierney, S.
Wearden, A.
A qualitative interview study of people living with well-controlled Type 1 diabetes
title A qualitative interview study of people living with well-controlled Type 1 diabetes
title_full A qualitative interview study of people living with well-controlled Type 1 diabetes
title_fullStr A qualitative interview study of people living with well-controlled Type 1 diabetes
title_full_unstemmed A qualitative interview study of people living with well-controlled Type 1 diabetes
title_short A qualitative interview study of people living with well-controlled Type 1 diabetes
title_sort qualitative interview study of people living with well-controlled type 1 diabetes
url http://hdl.handle.net/20.500.11937/71370