Challenges and Inequalities of Opportunities in European Psychiatry Research: The Example of Psychodiagnostic Tool Availability in Research on Early Autism Identification

© 2016 Hogrefe Publishing. Europe is diverse in terms of economy, cultures, socio-demography, and languages. A crucial aspect of psychiatric research is the availability of standardized screening, diagnostic, and characterization instruments. We fine-mapped the accessibility of 14 clinical scales an...

Full description

Bibliographic Details
Main Authors: Bolte, Sven, Tomalski, P., Marschik, P., Berggren, S., Norberg, J., Falck-Ytter, T., Pokorska, O., Jones, E., Charman, T., Roeyers, H., Kostrzewa, E.
Format: Journal Article
Published: Hogrefe Publishing 2016
Online Access:http://hdl.handle.net/20.500.11937/68931
_version_ 1848761925098274816
author Bolte, Sven
Tomalski, P.
Marschik, P.
Berggren, S.
Norberg, J.
Falck-Ytter, T.
Pokorska, O.
Jones, E.
Charman, T.
Roeyers, H.
Kostrzewa, E.
author_facet Bolte, Sven
Tomalski, P.
Marschik, P.
Berggren, S.
Norberg, J.
Falck-Ytter, T.
Pokorska, O.
Jones, E.
Charman, T.
Roeyers, H.
Kostrzewa, E.
author_sort Bolte, Sven
building Curtin Institutional Repository
collection Online Access
description © 2016 Hogrefe Publishing. Europe is diverse in terms of economy, cultures, socio-demography, and languages. A crucial aspect of psychiatric research is the availability of standardized screening, diagnostic, and characterization instruments. We fine-mapped the accessibility of 14 clinical scales and cognitive tests for the assessment of early childhood Autism Spectrum Disorder (ASD; e.g., ADOS, ADI-R, SCQ, SRS, CHAT, MESL) within 21 European countries. These tools are essential for internationally com petitive early ASD detection research. We identified a considerable variation not only in the availability, but also psychometric standardization, and formal distribution of the instruments between the countries, privileging English speaking, high-income, and highly populated European countries. Absence of country-specific standardization was a problem across many countries, independent of income and size. Findings demonstrate, on a concrete level, the challenges in creating equal early ASD identification research opportunities in Europe, and the need for increased funding for instrument development and validation. We discuss the reasons, implications, and consequences of this inequity and ways of reducing it.
first_indexed 2025-11-14T10:39:25Z
format Journal Article
id curtin-20.500.11937-68931
institution Curtin University Malaysia
institution_category Local University
last_indexed 2025-11-14T10:39:25Z
publishDate 2016
publisher Hogrefe Publishing
recordtype eprints
repository_type Digital Repository
spelling curtin-20.500.11937-689312018-06-29T12:35:37Z Challenges and Inequalities of Opportunities in European Psychiatry Research: The Example of Psychodiagnostic Tool Availability in Research on Early Autism Identification Bolte, Sven Tomalski, P. Marschik, P. Berggren, S. Norberg, J. Falck-Ytter, T. Pokorska, O. Jones, E. Charman, T. Roeyers, H. Kostrzewa, E. © 2016 Hogrefe Publishing. Europe is diverse in terms of economy, cultures, socio-demography, and languages. A crucial aspect of psychiatric research is the availability of standardized screening, diagnostic, and characterization instruments. We fine-mapped the accessibility of 14 clinical scales and cognitive tests for the assessment of early childhood Autism Spectrum Disorder (ASD; e.g., ADOS, ADI-R, SCQ, SRS, CHAT, MESL) within 21 European countries. These tools are essential for internationally com petitive early ASD detection research. We identified a considerable variation not only in the availability, but also psychometric standardization, and formal distribution of the instruments between the countries, privileging English speaking, high-income, and highly populated European countries. Absence of country-specific standardization was a problem across many countries, independent of income and size. Findings demonstrate, on a concrete level, the challenges in creating equal early ASD identification research opportunities in Europe, and the need for increased funding for instrument development and validation. We discuss the reasons, implications, and consequences of this inequity and ways of reducing it. 2016 Journal Article http://hdl.handle.net/20.500.11937/68931 10.1027/1015-5759/a000340 Hogrefe Publishing restricted
spellingShingle Bolte, Sven
Tomalski, P.
Marschik, P.
Berggren, S.
Norberg, J.
Falck-Ytter, T.
Pokorska, O.
Jones, E.
Charman, T.
Roeyers, H.
Kostrzewa, E.
Challenges and Inequalities of Opportunities in European Psychiatry Research: The Example of Psychodiagnostic Tool Availability in Research on Early Autism Identification
title Challenges and Inequalities of Opportunities in European Psychiatry Research: The Example of Psychodiagnostic Tool Availability in Research on Early Autism Identification
title_full Challenges and Inequalities of Opportunities in European Psychiatry Research: The Example of Psychodiagnostic Tool Availability in Research on Early Autism Identification
title_fullStr Challenges and Inequalities of Opportunities in European Psychiatry Research: The Example of Psychodiagnostic Tool Availability in Research on Early Autism Identification
title_full_unstemmed Challenges and Inequalities of Opportunities in European Psychiatry Research: The Example of Psychodiagnostic Tool Availability in Research on Early Autism Identification
title_short Challenges and Inequalities of Opportunities in European Psychiatry Research: The Example of Psychodiagnostic Tool Availability in Research on Early Autism Identification
title_sort challenges and inequalities of opportunities in european psychiatry research: the example of psychodiagnostic tool availability in research on early autism identification
url http://hdl.handle.net/20.500.11937/68931