To be understood: Transitioning to adult life for people with Autism Spectrum Disorder
Introduction: The purpose of this study was to explore the viewpoints of parents of young people with Autism Spectrum Disorder (ASD) in relation to their child's transition to adulthood. Methods: Data were collected during four structured focus groups with 19 parents of young people with ASD wi...
| Main Authors: | , , , |
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| Format: | Journal Article |
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Public Library of Science
2018
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| Online Access: | http://hdl.handle.net/20.500.11937/67087 |
| _version_ | 1848761471863881728 |
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| author | Thompson, C. Bolte, Sven Falkmer, Torbjorn Girdler, Sonya |
| author_facet | Thompson, C. Bolte, Sven Falkmer, Torbjorn Girdler, Sonya |
| author_sort | Thompson, C. |
| building | Curtin Institutional Repository |
| collection | Online Access |
| description | Introduction: The purpose of this study was to explore the viewpoints of parents of young people with Autism Spectrum Disorder (ASD) in relation to their child's transition to adulthood. Methods: Data were collected during four structured focus groups with 19 parents of young people with ASD with average to high intellectual capacities. Condensed meaning units were identified and checked during focus groups, and were subsequently linked to the International Classification of Functioning, Disability and Health (ICF). Results: Three major themes emerged: to be understood, to understand the world and to succeed. The ICF domains of activity and participation and environmental factors emerged as having the greatest potential to influence transition outcomes. Conclusions: Policies and services should focus on strengths to maximise participation in higher education, employment and independent living amongst young people with ASD. Interventions targeting environmental factors could be effective in improving participation in adult life. Person-centred and individualised approaches could further complement this approach supporting the transition to adulthood for people with ASD, ultimately improving outcomes in adulthood. |
| first_indexed | 2025-11-14T10:32:12Z |
| format | Journal Article |
| id | curtin-20.500.11937-67087 |
| institution | Curtin University Malaysia |
| institution_category | Local University |
| last_indexed | 2025-11-14T10:32:12Z |
| publishDate | 2018 |
| publisher | Public Library of Science |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | curtin-20.500.11937-670872018-07-17T00:07:37Z To be understood: Transitioning to adult life for people with Autism Spectrum Disorder Thompson, C. Bolte, Sven Falkmer, Torbjorn Girdler, Sonya Introduction: The purpose of this study was to explore the viewpoints of parents of young people with Autism Spectrum Disorder (ASD) in relation to their child's transition to adulthood. Methods: Data were collected during four structured focus groups with 19 parents of young people with ASD with average to high intellectual capacities. Condensed meaning units were identified and checked during focus groups, and were subsequently linked to the International Classification of Functioning, Disability and Health (ICF). Results: Three major themes emerged: to be understood, to understand the world and to succeed. The ICF domains of activity and participation and environmental factors emerged as having the greatest potential to influence transition outcomes. Conclusions: Policies and services should focus on strengths to maximise participation in higher education, employment and independent living amongst young people with ASD. Interventions targeting environmental factors could be effective in improving participation in adult life. Person-centred and individualised approaches could further complement this approach supporting the transition to adulthood for people with ASD, ultimately improving outcomes in adulthood. 2018 Journal Article http://hdl.handle.net/20.500.11937/67087 10.1371/journal.pone.0194758 http://creativecommons.org/licenses/by/4.0/ Public Library of Science fulltext |
| spellingShingle | Thompson, C. Bolte, Sven Falkmer, Torbjorn Girdler, Sonya To be understood: Transitioning to adult life for people with Autism Spectrum Disorder |
| title | To be understood: Transitioning to adult life for people with Autism Spectrum Disorder |
| title_full | To be understood: Transitioning to adult life for people with Autism Spectrum Disorder |
| title_fullStr | To be understood: Transitioning to adult life for people with Autism Spectrum Disorder |
| title_full_unstemmed | To be understood: Transitioning to adult life for people with Autism Spectrum Disorder |
| title_short | To be understood: Transitioning to adult life for people with Autism Spectrum Disorder |
| title_sort | to be understood: transitioning to adult life for people with autism spectrum disorder |
| url | http://hdl.handle.net/20.500.11937/67087 |