Dialogue on Ideal End-of-Life Care for Those With Dementia

Purpose: To identify both meanings and perceptions of delivery of end-of-life (EoL) care for the person experiencing dementia. Design/Methods: As part of a larger cross-sectional mixed methods study examining quality of life in dementia, perspectives of EoL care were sought from 136 seniors using op...

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Main Authors: Stewart-Archer, L., Afghani, A., Toye, Christine, Gomez, F.
Format: Journal Article
Published: Sage Publisher 2015
Online Access:http://hdl.handle.net/20.500.11937/64059
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author Stewart-Archer, L.
Afghani, A.
Toye, Christine
Gomez, F.
author_facet Stewart-Archer, L.
Afghani, A.
Toye, Christine
Gomez, F.
author_sort Stewart-Archer, L.
building Curtin Institutional Repository
collection Online Access
description Purpose: To identify both meanings and perceptions of delivery of end-of-life (EoL) care for the person experiencing dementia. Design/Methods: As part of a larger cross-sectional mixed methods study examining quality of life in dementia, perspectives of EoL care were sought from 136 seniors using open-ended questions administered at interview. Results: Seniors living in various settings identified obligatory requisites of care as time when the finality of death needed to be accepted, comfort was prioritized, family presence was valued, appearance remained important, and solitude or time “to be with God” was stressed. Skilled nursing care, honesty, and engaged family were also necessary. Implications: Understanding EoL preferences of those with dementia is critical for advocacy and service delivery.
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spelling curtin-20.500.11937-640592018-04-24T04:18:09Z Dialogue on Ideal End-of-Life Care for Those With Dementia Stewart-Archer, L. Afghani, A. Toye, Christine Gomez, F. Purpose: To identify both meanings and perceptions of delivery of end-of-life (EoL) care for the person experiencing dementia. Design/Methods: As part of a larger cross-sectional mixed methods study examining quality of life in dementia, perspectives of EoL care were sought from 136 seniors using open-ended questions administered at interview. Results: Seniors living in various settings identified obligatory requisites of care as time when the finality of death needed to be accepted, comfort was prioritized, family presence was valued, appearance remained important, and solitude or time “to be with God” was stressed. Skilled nursing care, honesty, and engaged family were also necessary. Implications: Understanding EoL preferences of those with dementia is critical for advocacy and service delivery. 2015 Journal Article http://hdl.handle.net/20.500.11937/64059 10.1177/1049909114532342 Sage Publisher restricted
spellingShingle Stewart-Archer, L.
Afghani, A.
Toye, Christine
Gomez, F.
Dialogue on Ideal End-of-Life Care for Those With Dementia
title Dialogue on Ideal End-of-Life Care for Those With Dementia
title_full Dialogue on Ideal End-of-Life Care for Those With Dementia
title_fullStr Dialogue on Ideal End-of-Life Care for Those With Dementia
title_full_unstemmed Dialogue on Ideal End-of-Life Care for Those With Dementia
title_short Dialogue on Ideal End-of-Life Care for Those With Dementia
title_sort dialogue on ideal end-of-life care for those with dementia
url http://hdl.handle.net/20.500.11937/64059