Promoting the consumer voice in palliative care: exploring the possibility of using consumer impact statements
BACKGROUND: It can be difficult to engage consumers in health decision making. This is particularly so in the area of palliative care, where consumers are very unwell and are unlikely to become involved in long-term programmes that promote consumer input. This paper explores the possibility of usin...
| Main Authors: | McConigley, Ruth, Shelby-James, T., Currow, D. |
|---|---|
| Format: | Journal Article |
| Published: |
Wiley-Blackwell Publishing Ltd.
2013
|
| Subjects: | |
| Online Access: | http://hdl.handle.net/20.500.11937/6263 |
Similar Items
Improving palliative care outcomes for Aboriginal Australians: Service providers' perspectives
by: Shahid, S., et al.
Published: (2013)
by: Shahid, S., et al.
Published: (2013)
The Patient Dignity Inventory: A Novel Way of Measuring Dignity-Related Distress in Palliative Care
by: Chochinov, H., et al.
Published: (2008)
by: Chochinov, H., et al.
Published: (2008)
How integrated are neurology and palliative care services? Results of a multicentre mapping exercise
by: van Vliet, Liesbeth M., et al.
Published: (2016)
by: van Vliet, Liesbeth M., et al.
Published: (2016)
Guidelines for a palliative approach for aged care in the community setting: A suite of resources
by: Toye, Christine, et al.
Published: (2012)
by: Toye, Christine, et al.
Published: (2012)
Adding Life To Days: Hope in Palliative Care
by: Geffen, Sarah
Published: (2009)
by: Geffen, Sarah
Published: (2009)
Palliative care for people living with HIV/AIDS in Uganda: investigation of patients and caregivers' outcome and professional perspectives
by: Too, Wesley
Published: (2011)
by: Too, Wesley
Published: (2011)
Oral care experiences of palliative care patients, their relatives/carers and healthcare professionals
by: Delgado, M.B., et al.
Published: (2021)
by: Delgado, M.B., et al.
Published: (2021)
Occupational therapy in palliative care: Is it under-utilised in Western Australia?
by: Halkett, Georgia, et al.
Published: (2010)
by: Halkett, Georgia, et al.
Published: (2010)
End stage heart failure patients: Palliative care in general practice
by: Davidson, Patricia, et al.
Published: (2010)
by: Davidson, Patricia, et al.
Published: (2010)
Depression and anxiety in palliative care inpatients compared with those receiving palliative careat home
by: Austin, P., et al.
Published: (2011)
by: Austin, P., et al.
Published: (2011)
A qualitative investigation of the palliative care needs of terminally ill people who live alone
by: Aoun, Samar, et al.
Published: (2008)
by: Aoun, Samar, et al.
Published: (2008)
An Insight Into the Delivery of a Palliative Approach in Residential Aged Care. The General Practitioner Perspective.
by: Phillips, J., et al.
Published: (2009)
by: Phillips, J., et al.
Published: (2009)
Supportive and palliative care needs of families of children who die from cancer: an Australian study
by: Monterosso, Leanne, et al.
Published: (2008)
by: Monterosso, Leanne, et al.
Published: (2008)
Nurses' perceptions of caring for dying patients in an open critical care unit: a descriptive exploratory study
by: McCallum, Amanda, et al.
Published: (2013)
by: McCallum, Amanda, et al.
Published: (2013)
Care and communication between health professionals and patients affected by severe or chronic illness in community settings: a qualitative study of care at the end of life
by: Pollock, Kristian, et al.
Published: (2015)
by: Pollock, Kristian, et al.
Published: (2015)
Understanding the burden on palliative care home carers: A phenomenological account
by: Guilfoyle, A., et al.
Published: (2008)
by: Guilfoyle, A., et al.
Published: (2008)
Bereavement and palliative care: A public health perspective
by: Rumbold, B., et al.
Published: (2014)
by: Rumbold, B., et al.
Published: (2014)
Education that makes a difference to palliative and end of life care at the bedside in a resource-poor context: the situation of Cameroon
by: Bassah, Nahyeni
Published: (2016)
by: Bassah, Nahyeni
Published: (2016)
Professional relationships in palliative care decision making
by: Lee, S., et al.
Published: (2008)
by: Lee, S., et al.
Published: (2008)
What is the extent of potentially avoidable admissions amongst hospital inpatients with palliative care needs?
by: Gott, Merryn, et al.
Published: (2013)
by: Gott, Merryn, et al.
Published: (2013)
Is occupation missing from occupational therapy in palliative care?
by: Keesing, Sharon, et al.
Published: (2011)
by: Keesing, Sharon, et al.
Published: (2011)
A Tripartite Model of Community Attitudes to Palliative Care
by: O’Connor, Moira, et al.
Published: (2019)
by: O’Connor, Moira, et al.
Published: (2019)
Understanding home, homeland, and family at the end of life: a qualitative study of older South Asians in East London
by: Ramasamy Venktasalu, Munikumar
Published: (2011)
by: Ramasamy Venktasalu, Munikumar
Published: (2011)
Pharmacovigilance in hospice/palliative care: net effect of haloperidol for nausea or vomiting
by: Digges, Madeline, et al.
Published: (2018)
by: Digges, Madeline, et al.
Published: (2018)
The prevalence of anxiety and depression in palliative care patients with cancer in Western Australia and New South Wales
by: O'Connor, Moira, et al.
Published: (2010)
by: O'Connor, Moira, et al.
Published: (2010)
“It Is a Whole Different Life from the Life I Used to Live”: Assessing Parents’ Support Needs in Paediatric Palliative Care
by: Aoun, Samar, et al.
Published: (2022)
by: Aoun, Samar, et al.
Published: (2022)
Would people with Parkinson's disease benefit from palliative care?
by: Hudson, P., et al.
Published: (2006)
by: Hudson, P., et al.
Published: (2006)
Care of the dying, dead, and bereaved: developing the curriculum framework in undergraduate nursing education
by: Agustina, Hana Rizmadewi
Published: (2021)
by: Agustina, Hana Rizmadewi
Published: (2021)
Exploring the quality of life at the end of life (QUAL-E) instrument with Australian palliative care hospital patients: hurdles and directions
by: Wilkinson, A., et al.
Published: (2014)
by: Wilkinson, A., et al.
Published: (2014)
Advance care planning: a systematic review about experiences of patients with a life-threatening or life-limiting illness
by: Zwakman, M., et al.
Published: (2018)
by: Zwakman, M., et al.
Published: (2018)
Delivering palliative care in the community: community nurses' experiences and perceptions of their role
by: Carter, Laura
Published: (2008)
by: Carter, Laura
Published: (2008)
Responding to desire to die statements from patients with advanced disease: recommendations for health professionals
by: Hudson, P., et al.
Published: (2006)
by: Hudson, P., et al.
Published: (2006)
Developing and testing a strategy to enhance a palliative approach and care continuity for people who have dementia: Study overview and protocol
by: Toye, Christine, et al.
Published: (2012)
by: Toye, Christine, et al.
Published: (2012)
Predicting family caregiver psychosocial functioning in palliative care
by: Hudson, P., et al.
Published: (2006)
by: Hudson, P., et al.
Published: (2006)
Health promoting palliative care through higher education reform: development and evaluation of a new humanities course in thanatology
by: Ho, Andy Hau Yan
Published: (2016)
by: Ho, Andy Hau Yan
Published: (2016)
Transitioning towards end-of-life care in Jordanian critical care units: health care professionals' perspectives
by: Almansour, Issa Mohammad Ali
Published: (2015)
by: Almansour, Issa Mohammad Ali
Published: (2015)
Impact of the Macmillan specialist Care at Home service: a mixed methods evaluation across six sites
by: Johnston, Bridget, et al.
Published: (2018)
by: Johnston, Bridget, et al.
Published: (2018)
Exploring home-based supportive and palliative care for men living with advanced-stage prostate cancer in a resource-limited Sub-Saharan African country (Ghana)
by: Salifu, Yakubu
Published: (2019)
by: Salifu, Yakubu
Published: (2019)
Pediatric cancer deaths: curative or palliative?
by: Menon, Bina Sharine, et al.
Published: (2008)
by: Menon, Bina Sharine, et al.
Published: (2008)
End of life care for older cancer patients in China:
lived experiences from patients, family caregivers and health professionals
by: Cui, Bing
Published: (2021)
by: Cui, Bing
Published: (2021)
Similar Items
-
Improving palliative care outcomes for Aboriginal Australians: Service providers' perspectives
by: Shahid, S., et al.
Published: (2013) -
The Patient Dignity Inventory: A Novel Way of Measuring Dignity-Related Distress in Palliative Care
by: Chochinov, H., et al.
Published: (2008) -
How integrated are neurology and palliative care services? Results of a multicentre mapping exercise
by: van Vliet, Liesbeth M., et al.
Published: (2016) -
Guidelines for a palliative approach for aged care in the community setting: A suite of resources
by: Toye, Christine, et al.
Published: (2012) -
Adding Life To Days: Hope in Palliative Care
by: Geffen, Sarah
Published: (2009)