Administration of Home Intravenous Chemotherapy to Children by their Parents: Parents’ Evaluation of a Nationwide Program

© 2016, © 2016 by Association of Pediatric Hematology/Oncology Nurses. Objectives: Caring for a child with cancer can disrupt family life and financial stability, in addition to affecting the child’s social, emotional, and educational development. Health care providers must consider ways to mini...

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Main Authors: McCall, C., Mannion, M., Hilliard, C., Lannon, P., McKenna, F., O Marcaigh, A., Slevin, Terry, Smith, O., Storey, L.
Format: Journal Article
Published: Sage Publications 2017
Online Access:http://hdl.handle.net/20.500.11937/62513
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author McCall, C.
Mannion, M.
Hilliard, C.
Lannon, P.
McKenna, F.
O Marcaigh, A.
Slevin, Terry
Smith, O.
Storey, L.
author_facet McCall, C.
Mannion, M.
Hilliard, C.
Lannon, P.
McKenna, F.
O Marcaigh, A.
Slevin, Terry
Smith, O.
Storey, L.
author_sort McCall, C.
building Curtin Institutional Repository
collection Online Access
description © 2016, © 2016 by Association of Pediatric Hematology/Oncology Nurses. Objectives: Caring for a child with cancer can disrupt family life and financial stability, in addition to affecting the child’s social, emotional, and educational development. Health care providers must consider ways to minimize the negative impact of illness and hospitalization on the child and family. This study evaluates a nationwide initiative to educate and support parents to administer chemotherapy to their child in their home. Method: A questionnaire was circulated to parents participating in a home chemotherapy program from 2009 to 2014 (n = 140), seeking their perspective on the education program, and the benefits and concerns associated with administering home chemotherapy. Data analysis was conducted using a combination of descriptive statistics and content analysis. Results: Questionnaires were received from 108 parents (response rate = 77%). Overall, the program was positively evaluated with 100% of parents (n = 108) reporting that the training met their needs. More than one-third of parents (41%, n = 44) initially felt nervous about home chemotherapy but reported that the education program helped assuage their concerns. Benefits included reduced financial costs, reduced travel time to hospital, less disruption to family life, and less stress for the child and family. No medication errors were reported during the evaluation period. Conclusion: An important feature of the program is the partnership approach, which ensures that parents’ decision to enter the program is informed, appropriate for their situation, and centered on the needs of the child.
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spelling curtin-20.500.11937-625132018-02-01T05:57:51Z Administration of Home Intravenous Chemotherapy to Children by their Parents: Parents’ Evaluation of a Nationwide Program McCall, C. Mannion, M. Hilliard, C. Lannon, P. McKenna, F. O Marcaigh, A. Slevin, Terry Smith, O. Storey, L. © 2016, © 2016 by Association of Pediatric Hematology/Oncology Nurses. Objectives: Caring for a child with cancer can disrupt family life and financial stability, in addition to affecting the child’s social, emotional, and educational development. Health care providers must consider ways to minimize the negative impact of illness and hospitalization on the child and family. This study evaluates a nationwide initiative to educate and support parents to administer chemotherapy to their child in their home. Method: A questionnaire was circulated to parents participating in a home chemotherapy program from 2009 to 2014 (n = 140), seeking their perspective on the education program, and the benefits and concerns associated with administering home chemotherapy. Data analysis was conducted using a combination of descriptive statistics and content analysis. Results: Questionnaires were received from 108 parents (response rate = 77%). Overall, the program was positively evaluated with 100% of parents (n = 108) reporting that the training met their needs. More than one-third of parents (41%, n = 44) initially felt nervous about home chemotherapy but reported that the education program helped assuage their concerns. Benefits included reduced financial costs, reduced travel time to hospital, less disruption to family life, and less stress for the child and family. No medication errors were reported during the evaluation period. Conclusion: An important feature of the program is the partnership approach, which ensures that parents’ decision to enter the program is informed, appropriate for their situation, and centered on the needs of the child. 2017 Journal Article http://hdl.handle.net/20.500.11937/62513 10.1177/1043454216646533 Sage Publications restricted
spellingShingle McCall, C.
Mannion, M.
Hilliard, C.
Lannon, P.
McKenna, F.
O Marcaigh, A.
Slevin, Terry
Smith, O.
Storey, L.
Administration of Home Intravenous Chemotherapy to Children by their Parents: Parents’ Evaluation of a Nationwide Program
title Administration of Home Intravenous Chemotherapy to Children by their Parents: Parents’ Evaluation of a Nationwide Program
title_full Administration of Home Intravenous Chemotherapy to Children by their Parents: Parents’ Evaluation of a Nationwide Program
title_fullStr Administration of Home Intravenous Chemotherapy to Children by their Parents: Parents’ Evaluation of a Nationwide Program
title_full_unstemmed Administration of Home Intravenous Chemotherapy to Children by their Parents: Parents’ Evaluation of a Nationwide Program
title_short Administration of Home Intravenous Chemotherapy to Children by their Parents: Parents’ Evaluation of a Nationwide Program
title_sort administration of home intravenous chemotherapy to children by their parents: parents’ evaluation of a nationwide program
url http://hdl.handle.net/20.500.11937/62513