Using blogs to explore the lived-experience of life after stroke: "A journey of discovery I never wanted to take"
Aims: To explore the lived-experiences of stroke survivors as expressed in blogs and to discover the role the blogs play in the writers' lives. Background: Stroke can be a devastating, life changing event. Previous qualitative studies tend to examine one aspect of life after stroke. As stroke o...
| Main Authors: | , , |
|---|---|
| Format: | Journal Article |
| Published: |
Blackwell Publishing Ltd
2018
|
| Online Access: | http://hdl.handle.net/20.500.11937/58957 |
| _version_ | 1848760386754445312 |
|---|---|
| author | Thomas, C. Allison, R. Latour, Jos |
| author_facet | Thomas, C. Allison, R. Latour, Jos |
| author_sort | Thomas, C. |
| building | Curtin Institutional Repository |
| collection | Online Access |
| description | Aims: To explore the lived-experiences of stroke survivors as expressed in blogs and to discover the role the blogs play in the writers' lives. Background: Stroke can be a devastating, life changing event. Previous qualitative studies tend to examine one aspect of life after stroke. As stroke often has multiple effects, it is necessary to look widely at its lived-experience. New resources which can enable researchers to explore the lived-experience of stroke are blogs. Design: Phenomenological exploration using an interpretive thematic analysis. Methods: The Internet was searched for stroke survivors' blogs (January-March 2016) using pre-set criteria, seeking blogs with entries over an extended time ( > 1 year). Suitable blogs were identified and codes of meaning were identified and developed into categories, subthemes and themes. Findings: Eight blogs were identified for analysis. Of the 40 categories, eight subthemes were assimilated; internal dialogue, emotions, transition, stroke effects, health care, "in the world", relationships, rehabilitation. Two main themes were identified related to perspectives of lived-experience; Internal relationship with "self" and External relationship with "the world". Participants expressed loss and initially strove to regain their "old" lives, their focus being recovery and independence. Conclusion: Stroke survivors must transition from their previous life to a new and initially unwelcome way of being. Rehabilitation should respect this process and support stroke survivors as they undertake this individual journey. |
| first_indexed | 2025-11-14T10:14:57Z |
| format | Journal Article |
| id | curtin-20.500.11937-58957 |
| institution | Curtin University Malaysia |
| institution_category | Local University |
| last_indexed | 2025-11-14T10:14:57Z |
| publishDate | 2018 |
| publisher | Blackwell Publishing Ltd |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | curtin-20.500.11937-589572018-10-26T03:21:25Z Using blogs to explore the lived-experience of life after stroke: "A journey of discovery I never wanted to take" Thomas, C. Allison, R. Latour, Jos Aims: To explore the lived-experiences of stroke survivors as expressed in blogs and to discover the role the blogs play in the writers' lives. Background: Stroke can be a devastating, life changing event. Previous qualitative studies tend to examine one aspect of life after stroke. As stroke often has multiple effects, it is necessary to look widely at its lived-experience. New resources which can enable researchers to explore the lived-experience of stroke are blogs. Design: Phenomenological exploration using an interpretive thematic analysis. Methods: The Internet was searched for stroke survivors' blogs (January-March 2016) using pre-set criteria, seeking blogs with entries over an extended time ( > 1 year). Suitable blogs were identified and codes of meaning were identified and developed into categories, subthemes and themes. Findings: Eight blogs were identified for analysis. Of the 40 categories, eight subthemes were assimilated; internal dialogue, emotions, transition, stroke effects, health care, "in the world", relationships, rehabilitation. Two main themes were identified related to perspectives of lived-experience; Internal relationship with "self" and External relationship with "the world". Participants expressed loss and initially strove to regain their "old" lives, their focus being recovery and independence. Conclusion: Stroke survivors must transition from their previous life to a new and initially unwelcome way of being. Rehabilitation should respect this process and support stroke survivors as they undertake this individual journey. 2018 Journal Article http://hdl.handle.net/20.500.11937/58957 10.1111/jan.13457 Blackwell Publishing Ltd fulltext |
| spellingShingle | Thomas, C. Allison, R. Latour, Jos Using blogs to explore the lived-experience of life after stroke: "A journey of discovery I never wanted to take" |
| title | Using blogs to explore the lived-experience of life after stroke: "A journey of discovery I never wanted to take" |
| title_full | Using blogs to explore the lived-experience of life after stroke: "A journey of discovery I never wanted to take" |
| title_fullStr | Using blogs to explore the lived-experience of life after stroke: "A journey of discovery I never wanted to take" |
| title_full_unstemmed | Using blogs to explore the lived-experience of life after stroke: "A journey of discovery I never wanted to take" |
| title_short | Using blogs to explore the lived-experience of life after stroke: "A journey of discovery I never wanted to take" |
| title_sort | using blogs to explore the lived-experience of life after stroke: "a journey of discovery i never wanted to take" |
| url | http://hdl.handle.net/20.500.11937/58957 |