Exploring quality of life of children with cerebral palsy and intellectual disability: What are the important domains of life?

QR Code

Exploring quality of life of children with cerebral palsy and intellectual disability: What are the important domains of life?

Background: Although it is estimated that half of all children with cerebral palsy also have comorbid intellectual disability, the domains of quality of life (QOL) important for these children are not well understood. The aim of this study was to identify important domains of QOL for these children...

Full description

Bibliographic Details
Main Authors:	Davis, E., Reddihough, D., Murphy, N., Epstein, A., Reid, S., Whitehouse, A., Williams, K., Leonard, H., Downs, Jennepher
Format:	Journal Article
Published:	Blackwell Publishing Ltd 2017
Online Access:	http://hdl.handle.net/20.500.11937/58537

Similar Items

Characterising quality of life in children with intellectual disabilities
by: Downs, Jennepher, et al.
Published: (2016)

Comorbidities and quality of life in children with intellectual disability
by: Reddihough, D., et al.
Published: (2021)

Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability
by: Jacoby, P., et al.
Published: (2020)

Quality of life domains for children with Down syndrome
by: Murphy, N., et al.
Published: (2016)

Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure
by: Downs, Jennepher, et al.
Published: (2018)

The relationship between quality of life and functioning for children with cerebral palsy
by: Shelly, A., et al.
Published: (2008)

A framework for defining quality of life in children with autism spectrum disorder
by: Epstein, A., et al.
Published: (2016)

Parent-observed thematic data on quality of life in children with autism spectrum disorder
by: Epstein, A., et al.
Published: (2017)

The effect of functioning on Quality of Life Inventory-Disability measured quality of life is not mediated or moderated by parental psychological distress
by: Whitehouse, A.J.O., et al.
Published: (2021)

Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods
by: Epstein, A., et al.
Published: (2015)

Quality of life of adolescents with cerebral palsy: Perspectives of adolescents and parents
by: Davis, E., et al.
Published: (2009)

A framework for understanding quality of life domains in individuals with the CDKL5 deficiency disorder
by: Tangarorang, J., et al.
Published: (2019)

Qualitative Analysis of Parental Observations on Quality of Life in Australian Children with Down Syndrome
by: Murphy, N., et al.
Published: (2017)

Description and psychometric properties of the CP QOL-Teen: A quality of life questionnaire for adolescents with cerebral palsy
by: Davis, E., et al.
Published: (2013)

Vitamin D and people with intellectual disability
by: Vanlint, S., et al.
Published: (2008)

The impact of caring for a child with cerebral palsy: Quality of life for mothers and fathers
by: Davis, E., et al.
Published: (2010)

A comparison of activity, participation and quality of life in children with and without spastic diplegia cerebral palsy
by: Calley, A., et al.
Published: (2012)

Using directed-content analysis to identify a framework for understanding quality of life in adults with Rett syndrome
by: Strugnell, A., et al.
Published: (2019)

The prevalence of mental health disorders and symptoms in children and adolescents with cerebral palsy: a systematic review and meta-analysis
by: Downs, Jennepher, et al.
Published: (2017)

Determinants of sleep problems in children with intellectual disability
by: Gilbertson, M., et al.
Published: (2021)

Erratum to The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers [Child: care, health and development, 36, (2010) 63 73]
by: Davis, E., et al.
Published: (2010)

Caring for a child with severe intellectual disability in China: The example of Rett syndrome
by: Lim, Faye, et al.
Published: (2013)

Why we need international rare disease registers to study individual rare disorders associated with intellectual disabilities
by: Leonard, H., et al.
Published: (2016)

A guide for the assessment and management of vitamin D status in people with intellectual disability (developed as an AADDM Working Party initiative)
by: Vanlint, S., et al.
Published: (2008)

Impacts of caring for a child with the CDKL5 disorder on parental wellbeing and family quality of life
by: Mori, Y., et al.
Published: (2017)

Transition to adulthood for young people with intellectual disability: the experiences of their families
by: Leonard, H., et al.
Published: (2016)

Comparing Parental Well-Being and Its Determinants Across Three Different Genetic Disorders Causing Intellectual Disability
by: Mori, Y., et al.
Published: (2018)

Rehabilitation and neuroplasticity in children with unilateral cerebral palsy
by: Reid, L., et al.
Published: (2015)

Epidemiology of gastrostomy insertion for children and adolescents with intellectual disability
by: Wong, K., et al.
Published: (2019)

Survival of children and adolescents with intellectual disability following gastrostomy insertion
by: Wong, K., et al.
Published: (2020)

A systematic review of the psychometric properties of Quality of Life measures for school aged children with cerebral palsy
by: Carlon, S., et al.
Published: (2010)

Running in people with cerebral palsy: A systematic review
by: Chappell, A., et al.
Published: (2018)

Effect of upper limb botulinum toxin-A therapy on health-related quality of life in children with hemiplegic cerebral palsy
by: Redman, T., et al.
Published: (2008)

Oropharyngeal dysphagia and cerebral palsy
by: Benfer, K., et al.
Published: (2017)

Determinants of quality of life in Rett syndrome: New findings on associations with genotype
by: Mendoza, J., et al.
Published: (2021)

School readiness of children with cerebral palsy
by: Gehrmann, F., et al.
Published: (2014)

Impact of intensive upper limb rehabilitation on quality of life: A randomized trial in children with unilateral cerebral palsy
by: Sakzewski, L., et al.
Published: (2012)

The utilization of outpatient rehabilitation services and quality of life in children with cerebral palsy in Hospital Universiti Sains Malaysia (HUSM)
by: Lim Chia, Shing
Published: (2008)

Muscle morphology of the lower leg in ambulant children with spastic cerebral palsy
by: Pitcher, C., et al.
Published: (2018)

Use of health services in the last year of life and cause of death in people with intellectual disability: A retrospective matched cohort study
by: Brameld, Kate, et al.
Published: (2018)

Cannot write session to /tmp/vufind_sessions/sess_uf4bfpi5th4r2iu0rs0qts3gc6