The Ark: a customizable web-based data management tool for health and medical research

Summary: The Ark is an open-source web-based tool that allows researchers to manage health and medical research data for humans and animals without specialized database skills or programming expertise. The system provides data management for core research information including demographic, phenotype...

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Main Authors: Bickerstaffe, A., Ranaweera, T., Endersby, T., Ellis, C., Maddumarachchi, S., Gooden, G., White, P., Moses, Eric, Hewitt, A., Hopper, J.
Format: Journal Article
Published: Oxford University Press 2017
Online Access:http://hdl.handle.net/20.500.11937/54463
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author Bickerstaffe, A.
Ranaweera, T.
Endersby, T.
Ellis, C.
Maddumarachchi, S.
Gooden, G.
White, P.
Moses, Eric
Hewitt, A.
Hopper, J.
author_facet Bickerstaffe, A.
Ranaweera, T.
Endersby, T.
Ellis, C.
Maddumarachchi, S.
Gooden, G.
White, P.
Moses, Eric
Hewitt, A.
Hopper, J.
author_sort Bickerstaffe, A.
building Curtin Institutional Repository
collection Online Access
description Summary: The Ark is an open-source web-based tool that allows researchers to manage health and medical research data for humans and animals without specialized database skills or programming expertise. The system provides data management for core research information including demographic, phenotype, biospecimen and pedigree data, in addition to supporting typical investigator requirements such as tracking participant consent and correspondence, whilst also being able to generate custom data exports and reports. The Ark is 'study generic' by design and highly configurable via its web interface, allowing researchers to tailor the system to the specific data management requirements of their study. Availability and Implementation: Source code for The Ark can be obtained freely from the website <a href="https://github.com/The-Ark-Informatics/ark">https://github.com/The-Ark-Informatics/ark</a>/ . The source code can be modified and redistributed under the terms of the GNU GPL v3 license. Documentation and a pre-configured virtual appliance can be found at the website <a href="http://sphinx.org.au/the-ark">http://sphinx.org.au/the-ark</a>/ . Contact: adrianb@unimelb.edu.au. Supplementary information: Supplementary data are available at Bioinformatics online.
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institution Curtin University Malaysia
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last_indexed 2025-11-14T09:58:55Z
publishDate 2017
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spelling curtin-20.500.11937-544632017-09-13T16:11:45Z The Ark: a customizable web-based data management tool for health and medical research Bickerstaffe, A. Ranaweera, T. Endersby, T. Ellis, C. Maddumarachchi, S. Gooden, G. White, P. Moses, Eric Hewitt, A. Hopper, J. Summary: The Ark is an open-source web-based tool that allows researchers to manage health and medical research data for humans and animals without specialized database skills or programming expertise. The system provides data management for core research information including demographic, phenotype, biospecimen and pedigree data, in addition to supporting typical investigator requirements such as tracking participant consent and correspondence, whilst also being able to generate custom data exports and reports. The Ark is 'study generic' by design and highly configurable via its web interface, allowing researchers to tailor the system to the specific data management requirements of their study. Availability and Implementation: Source code for The Ark can be obtained freely from the website <a href="https://github.com/The-Ark-Informatics/ark">https://github.com/The-Ark-Informatics/ark</a>/ . The source code can be modified and redistributed under the terms of the GNU GPL v3 license. Documentation and a pre-configured virtual appliance can be found at the website <a href="http://sphinx.org.au/the-ark">http://sphinx.org.au/the-ark</a>/ . Contact: adrianb@unimelb.edu.au. Supplementary information: Supplementary data are available at Bioinformatics online. 2017 Journal Article http://hdl.handle.net/20.500.11937/54463 10.1093/bioinformatics/btw675 Oxford University Press restricted
spellingShingle Bickerstaffe, A.
Ranaweera, T.
Endersby, T.
Ellis, C.
Maddumarachchi, S.
Gooden, G.
White, P.
Moses, Eric
Hewitt, A.
Hopper, J.
The Ark: a customizable web-based data management tool for health and medical research
title The Ark: a customizable web-based data management tool for health and medical research
title_full The Ark: a customizable web-based data management tool for health and medical research
title_fullStr The Ark: a customizable web-based data management tool for health and medical research
title_full_unstemmed The Ark: a customizable web-based data management tool for health and medical research
title_short The Ark: a customizable web-based data management tool for health and medical research
title_sort ark: a customizable web-based data management tool for health and medical research
url http://hdl.handle.net/20.500.11937/54463