The triple challenges associated with age-related comorbidities in Down syndrome

Background: Major increases in the survival of people with Down syndrome during the last two generations have resulted in extended periods of adulthood requiring specialist care, which in turn necessitates greater understanding of the nature, timing and impact of comorbidities associated with the di...

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Main Authors: Glasson, E., Dye, Danielle, Bittles, A.
Format: Journal Article
Published: Wiley-Blackwell Publishing Ltd 2013
Subjects:
Online Access:http://hdl.handle.net/20.500.11937/47666
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author Glasson, E.
Dye, Danielle
Bittles, A.
author_facet Glasson, E.
Dye, Danielle
Bittles, A.
author_sort Glasson, E.
building Curtin Institutional Repository
collection Online Access
description Background: Major increases in the survival of people with Down syndrome during the last two generations have resulted in extended periods of adulthood requiring specialist care, which in turn necessitates greater understanding of the nature, timing and impact of comorbidities associated with the disorder. Method: The prevalence of five comorbidities reported as common in adults with Down syndrome, visual impairment, hearing impairment, epilepsy, thyroid disorders and dementia was assessed by decade of life. Results: From early adulthood, people with Down syndrome are at enhanced risk of developing new comorbidities and they may present with multiple conditions. Three specific challenges are identified and discussed: are comorbidities detected in a timely manner, is the clinical progress of the disorder adequately understood, and who is responsible for the provision of care? Conclusions: Further detailed investigations into the development and treatment of comorbidities across the lifespan are needed for a successful longitudinal approach to healthcare in people with Down syndrome. Implementation of this approach will better inform healthcare providers to ensure continuity of care with advancing age.
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spelling curtin-20.500.11937-476662018-03-29T09:07:10Z The triple challenges associated with age-related comorbidities in Down syndrome Glasson, E. Dye, Danielle Bittles, A. Down syndrome comorbidities ageing intellectual disability carers Background: Major increases in the survival of people with Down syndrome during the last two generations have resulted in extended periods of adulthood requiring specialist care, which in turn necessitates greater understanding of the nature, timing and impact of comorbidities associated with the disorder. Method: The prevalence of five comorbidities reported as common in adults with Down syndrome, visual impairment, hearing impairment, epilepsy, thyroid disorders and dementia was assessed by decade of life. Results: From early adulthood, people with Down syndrome are at enhanced risk of developing new comorbidities and they may present with multiple conditions. Three specific challenges are identified and discussed: are comorbidities detected in a timely manner, is the clinical progress of the disorder adequately understood, and who is responsible for the provision of care? Conclusions: Further detailed investigations into the development and treatment of comorbidities across the lifespan are needed for a successful longitudinal approach to healthcare in people with Down syndrome. Implementation of this approach will better inform healthcare providers to ensure continuity of care with advancing age. 2013 Journal Article http://hdl.handle.net/20.500.11937/47666 10.1111/jir.12026 Wiley-Blackwell Publishing Ltd restricted
spellingShingle Down syndrome
comorbidities
ageing
intellectual disability
carers
Glasson, E.
Dye, Danielle
Bittles, A.
The triple challenges associated with age-related comorbidities in Down syndrome
title The triple challenges associated with age-related comorbidities in Down syndrome
title_full The triple challenges associated with age-related comorbidities in Down syndrome
title_fullStr The triple challenges associated with age-related comorbidities in Down syndrome
title_full_unstemmed The triple challenges associated with age-related comorbidities in Down syndrome
title_short The triple challenges associated with age-related comorbidities in Down syndrome
title_sort triple challenges associated with age-related comorbidities in down syndrome
topic Down syndrome
comorbidities
ageing
intellectual disability
carers
url http://hdl.handle.net/20.500.11937/47666