The International Cancer Genome Consortium's evolving data-protection policies
The International Cancer Genome Consortium (ICGC) is an international initiative launched in 2008 to coordinate large-scale cancer genome studies from 50 different cancer types and subtypes of global clinical and societal importance. As of May 2014, 74 project teams in 17 countries in Asia, Australi...
| Main Authors: | , , , , , , , , , , |
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| Format: | Journal Article |
| Published: |
Nature Publishing Group
2014
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| Online Access: | http://hdl.handle.net/20.500.11937/44404 |
| _version_ | 1848756990898077696 |
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| author | Milius, D. Dove, E. Chalmers, D. Dyke, S. Kato, K. Nicolás, P. Ouellette, B. Ozenberger, B. Rodriguez, L. Zeps, Nikolajs Joly, Y. |
| author_facet | Milius, D. Dove, E. Chalmers, D. Dyke, S. Kato, K. Nicolás, P. Ouellette, B. Ozenberger, B. Rodriguez, L. Zeps, Nikolajs Joly, Y. |
| author_sort | Milius, D. |
| building | Curtin Institutional Repository |
| collection | Online Access |
| description | The International Cancer Genome Consortium (ICGC) is an international initiative launched in 2008 to coordinate large-scale cancer genome studies from 50 different cancer types and subtypes of global clinical and societal importance. As of May 2014, 74 project teams in 17 countries in Asia, Australia, Europe and North America are analyzing more than 25,000 tumor genomes (<a href="http://www.icgc.org/">http://www.icgc.org/</a>). In addition to its goal of generating comprehensive catalogs of genomic abnormalities to facilitate better understanding, treatment and prevention of cancer, ICGC is committed to making the data it generates available to the international research community as rapidly as possible, with minimal restrictions on appropriate data use. Here, we describe the experience of ICGC in addressing privacy and confidentiality issues raised by recent articles that expose re-identification threats for research participants. |
| first_indexed | 2025-11-14T09:20:59Z |
| format | Journal Article |
| id | curtin-20.500.11937-44404 |
| institution | Curtin University Malaysia |
| institution_category | Local University |
| last_indexed | 2025-11-14T09:20:59Z |
| publishDate | 2014 |
| publisher | Nature Publishing Group |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | curtin-20.500.11937-444042017-09-13T14:10:11Z The International Cancer Genome Consortium's evolving data-protection policies Milius, D. Dove, E. Chalmers, D. Dyke, S. Kato, K. Nicolás, P. Ouellette, B. Ozenberger, B. Rodriguez, L. Zeps, Nikolajs Joly, Y. The International Cancer Genome Consortium (ICGC) is an international initiative launched in 2008 to coordinate large-scale cancer genome studies from 50 different cancer types and subtypes of global clinical and societal importance. As of May 2014, 74 project teams in 17 countries in Asia, Australia, Europe and North America are analyzing more than 25,000 tumor genomes (<a href="http://www.icgc.org/">http://www.icgc.org/</a>). In addition to its goal of generating comprehensive catalogs of genomic abnormalities to facilitate better understanding, treatment and prevention of cancer, ICGC is committed to making the data it generates available to the international research community as rapidly as possible, with minimal restrictions on appropriate data use. Here, we describe the experience of ICGC in addressing privacy and confidentiality issues raised by recent articles that expose re-identification threats for research participants. 2014 Journal Article http://hdl.handle.net/20.500.11937/44404 10.1038/nbt.2926 Nature Publishing Group restricted |
| spellingShingle | Milius, D. Dove, E. Chalmers, D. Dyke, S. Kato, K. Nicolás, P. Ouellette, B. Ozenberger, B. Rodriguez, L. Zeps, Nikolajs Joly, Y. The International Cancer Genome Consortium's evolving data-protection policies |
| title | The International Cancer Genome Consortium's evolving data-protection policies |
| title_full | The International Cancer Genome Consortium's evolving data-protection policies |
| title_fullStr | The International Cancer Genome Consortium's evolving data-protection policies |
| title_full_unstemmed | The International Cancer Genome Consortium's evolving data-protection policies |
| title_short | The International Cancer Genome Consortium's evolving data-protection policies |
| title_sort | international cancer genome consortium's evolving data-protection policies |
| url | http://hdl.handle.net/20.500.11937/44404 |