Parental satisfaction with follow-up services for children with major anatomical congenital anomalies
Background: Since 1999 a multidisciplinary follow-up programme for parents and children with major anatomical congenital anomalies is in place in our hospital, run by a dedicated team. The aim of the present study was to evaluate the services of this team from a parental perspective. Methods: Parent...
| Main Authors: | , , , , , , |
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| Format: | Journal Article |
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Blackwell Publishing Ltd
2010
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| Online Access: | http://hdl.handle.net/20.500.11937/43847 |
| _version_ | 1848756825928761344 |
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| author | Van Dijk, M. Poley, M. Gischler, S. Mazer, P. IJsselstijn, H. Tibboel, D. Latour, Jos |
| author_facet | Van Dijk, M. Poley, M. Gischler, S. Mazer, P. IJsselstijn, H. Tibboel, D. Latour, Jos |
| author_sort | Van Dijk, M. |
| building | Curtin Institutional Repository |
| collection | Online Access |
| description | Background: Since 1999 a multidisciplinary follow-up programme for parents and children with major anatomical congenital anomalies is in place in our hospital, run by a dedicated team. The aim of the present study was to evaluate the services of this team from a parental perspective. Methods: Parents completed a questionnaire including open and closed questions about satisfaction with the various professional disciplines involved in the follow-up, statements on usefulness of the follow-up services and suggestions for improvement. Results: Four hundred and sixty-nine surveys were sent out, of which 71% were returned. Non-responding parents included significantly more parents of non-Dutch origin (P = 0.038) and parents who never responded to invitations for follow-up examinations (P < 0.001). Parental satisfaction differed for the various disciplines. Eighty per cent of the parents were (very) satisfied with the social worker, compared with 92% with nurses. More than half of the parents agreed that the follow-up services give peace of mind. Almost a quarter of parents, however, considered the follow-up services as redundant. The children of these parents had significantly shorter intensive care unit stay (P = 0.02), were older at the time of the questionnaire (P = 0.04), of higher socio-economic status (P = 0.001) and less likely to be of non-Dutch origin (P = 0.008). Sixty-one per cent of the parents had contacted the 24-h helpline. Ninety per cent of the parents were satisfied with the intensive care unit, almost 80% with the general ward. Conclusion: Overall, parents were satisfied with the services of the follow-up team. Some parents, however, saw room for improvement related to better communication, recognizability of the team and better planning and organization. © 2009 The Authors. Journal compilation © 2009 Blackwell Publishing Ltd. |
| first_indexed | 2025-11-14T09:18:22Z |
| format | Journal Article |
| id | curtin-20.500.11937-43847 |
| institution | Curtin University Malaysia |
| institution_category | Local University |
| last_indexed | 2025-11-14T09:18:22Z |
| publishDate | 2010 |
| publisher | Blackwell Publishing Ltd |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | curtin-20.500.11937-438472017-09-13T13:42:26Z Parental satisfaction with follow-up services for children with major anatomical congenital anomalies Van Dijk, M. Poley, M. Gischler, S. Mazer, P. IJsselstijn, H. Tibboel, D. Latour, Jos Background: Since 1999 a multidisciplinary follow-up programme for parents and children with major anatomical congenital anomalies is in place in our hospital, run by a dedicated team. The aim of the present study was to evaluate the services of this team from a parental perspective. Methods: Parents completed a questionnaire including open and closed questions about satisfaction with the various professional disciplines involved in the follow-up, statements on usefulness of the follow-up services and suggestions for improvement. Results: Four hundred and sixty-nine surveys were sent out, of which 71% were returned. Non-responding parents included significantly more parents of non-Dutch origin (P = 0.038) and parents who never responded to invitations for follow-up examinations (P < 0.001). Parental satisfaction differed for the various disciplines. Eighty per cent of the parents were (very) satisfied with the social worker, compared with 92% with nurses. More than half of the parents agreed that the follow-up services give peace of mind. Almost a quarter of parents, however, considered the follow-up services as redundant. The children of these parents had significantly shorter intensive care unit stay (P = 0.02), were older at the time of the questionnaire (P = 0.04), of higher socio-economic status (P = 0.001) and less likely to be of non-Dutch origin (P = 0.008). Sixty-one per cent of the parents had contacted the 24-h helpline. Ninety per cent of the parents were satisfied with the intensive care unit, almost 80% with the general ward. Conclusion: Overall, parents were satisfied with the services of the follow-up team. Some parents, however, saw room for improvement related to better communication, recognizability of the team and better planning and organization. © 2009 The Authors. Journal compilation © 2009 Blackwell Publishing Ltd. 2010 Journal Article http://hdl.handle.net/20.500.11937/43847 10.1111/j.1365-2214.2009.01014.x Blackwell Publishing Ltd restricted |
| spellingShingle | Van Dijk, M. Poley, M. Gischler, S. Mazer, P. IJsselstijn, H. Tibboel, D. Latour, Jos Parental satisfaction with follow-up services for children with major anatomical congenital anomalies |
| title | Parental satisfaction with follow-up services for children with major anatomical congenital anomalies |
| title_full | Parental satisfaction with follow-up services for children with major anatomical congenital anomalies |
| title_fullStr | Parental satisfaction with follow-up services for children with major anatomical congenital anomalies |
| title_full_unstemmed | Parental satisfaction with follow-up services for children with major anatomical congenital anomalies |
| title_short | Parental satisfaction with follow-up services for children with major anatomical congenital anomalies |
| title_sort | parental satisfaction with follow-up services for children with major anatomical congenital anomalies |
| url | http://hdl.handle.net/20.500.11937/43847 |