A telephone survey of factors affecting willingness to participate in health research surveys

In recent years, reduced participation has been encountered across all epidemiological study designs, both in terms of non-response as well as refusal. A low response rate may reduce the statistical power but, more importantly, results may not be generalizable to the wider community. Methods: In a t...

Full description

Bibliographic Details
Main Authors: Glass, D., Kelsall, H., Slegers, C., Forbes, A., Loff, B., Zion, D., Fritschi, Lin
Format: Journal Article
Published: BioMed Central Ltd. 2015
Online Access:http://hdl.handle.net/20.500.11937/4335
_version_ 1848744487161954304
author Glass, D.
Kelsall, H.
Slegers, C.
Forbes, A.
Loff, B.
Zion, D.
Fritschi, Lin
author_facet Glass, D.
Kelsall, H.
Slegers, C.
Forbes, A.
Loff, B.
Zion, D.
Fritschi, Lin
author_sort Glass, D.
building Curtin Institutional Repository
collection Online Access
description In recent years, reduced participation has been encountered across all epidemiological study designs, both in terms of non-response as well as refusal. A low response rate may reduce the statistical power but, more importantly, results may not be generalizable to the wider community. Methods: In a telephone survey of 1413 randomly selected members of the Australian general population and of 690 participants sourced from previous studies, we examined factors affecting people's stated willingness to participate in health research. Results: The majority of participants (61 %) expressed willingness to participate in health research in general but the percentage increased when provided with more specific information about the research. People were more willing if they have personal experience of the disease under study, and if the study was funded by government or charity rather than pharmaceutical companies. Conclusion: Despite a trend toward reduced participation rates, most participants expressed their willingness to participate in health research. However, when seeking participants, researchers should be concrete and specific about the nature of the research they want to carry out. The preferred method of recommended contact varies with the demographic characteristics.
first_indexed 2025-11-14T06:02:14Z
format Journal Article
id curtin-20.500.11937-4335
institution Curtin University Malaysia
institution_category Local University
last_indexed 2025-11-14T06:02:14Z
publishDate 2015
publisher BioMed Central Ltd.
recordtype eprints
repository_type Digital Repository
spelling curtin-20.500.11937-43352017-09-13T14:43:27Z A telephone survey of factors affecting willingness to participate in health research surveys Glass, D. Kelsall, H. Slegers, C. Forbes, A. Loff, B. Zion, D. Fritschi, Lin In recent years, reduced participation has been encountered across all epidemiological study designs, both in terms of non-response as well as refusal. A low response rate may reduce the statistical power but, more importantly, results may not be generalizable to the wider community. Methods: In a telephone survey of 1413 randomly selected members of the Australian general population and of 690 participants sourced from previous studies, we examined factors affecting people's stated willingness to participate in health research. Results: The majority of participants (61 %) expressed willingness to participate in health research in general but the percentage increased when provided with more specific information about the research. People were more willing if they have personal experience of the disease under study, and if the study was funded by government or charity rather than pharmaceutical companies. Conclusion: Despite a trend toward reduced participation rates, most participants expressed their willingness to participate in health research. However, when seeking participants, researchers should be concrete and specific about the nature of the research they want to carry out. The preferred method of recommended contact varies with the demographic characteristics. 2015 Journal Article http://hdl.handle.net/20.500.11937/4335 10.1186/s12889-015-2350-9 BioMed Central Ltd. fulltext
spellingShingle Glass, D.
Kelsall, H.
Slegers, C.
Forbes, A.
Loff, B.
Zion, D.
Fritschi, Lin
A telephone survey of factors affecting willingness to participate in health research surveys
title A telephone survey of factors affecting willingness to participate in health research surveys
title_full A telephone survey of factors affecting willingness to participate in health research surveys
title_fullStr A telephone survey of factors affecting willingness to participate in health research surveys
title_full_unstemmed A telephone survey of factors affecting willingness to participate in health research surveys
title_short A telephone survey of factors affecting willingness to participate in health research surveys
title_sort telephone survey of factors affecting willingness to participate in health research surveys
url http://hdl.handle.net/20.500.11937/4335