Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood.
Background: This study investigated the perceived benefits and negative impact associated with stressfulevents and chronic caregiving demands encountered by parents caring for young adults with anintellectual disability in the period of transition to adulthood.Methods A sample of 119 parents of you...
| Main Authors: | , , |
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| Format: | Journal Article |
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Wiley-Blackwell Publishing Ltd.
2008
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| Online Access: | http://hdl.handle.net/20.500.11937/41849 |
| _version_ | 1848756257789313024 |
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| author | Rapanaro, Cher Bartu, Anne Lee, Andy |
| author_facet | Rapanaro, Cher Bartu, Anne Lee, Andy |
| author_sort | Rapanaro, Cher |
| building | Curtin Institutional Repository |
| collection | Online Access |
| description | Background: This study investigated the perceived benefits and negative impact associated with stressfulevents and chronic caregiving demands encountered by parents caring for young adults with anintellectual disability in the period of transition to adulthood.Methods A sample of 119 parents of young adults described these outcomes in a questionnaire, which were then analysed using qualitative content analysis.Results Although parents identified a range of negative outcomes, they also reported positive outcomes(perceived benefits) in relation to stressful events and chronic demands encountered in this period, including personal growth and enhanced personal resources.Conclusions The language of stress and burden often used to describe parents' experiences during the period of their son or daughter's transition to adulthood, needs to coexist with a language of fulfilment, growth and gain, as used by parents themselves. The implications of these findings, in relation to professional interaction with and support of parents in this period, are discussed. |
| first_indexed | 2025-11-14T09:09:20Z |
| format | Journal Article |
| id | curtin-20.500.11937-41849 |
| institution | Curtin University Malaysia |
| institution_category | Local University |
| last_indexed | 2025-11-14T09:09:20Z |
| publishDate | 2008 |
| publisher | Wiley-Blackwell Publishing Ltd. |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | curtin-20.500.11937-418492017-09-13T15:59:40Z Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood. Rapanaro, Cher Bartu, Anne Lee, Andy parents young adults benefit finding Background: This study investigated the perceived benefits and negative impact associated with stressfulevents and chronic caregiving demands encountered by parents caring for young adults with anintellectual disability in the period of transition to adulthood.Methods A sample of 119 parents of young adults described these outcomes in a questionnaire, which were then analysed using qualitative content analysis.Results Although parents identified a range of negative outcomes, they also reported positive outcomes(perceived benefits) in relation to stressful events and chronic demands encountered in this period, including personal growth and enhanced personal resources.Conclusions The language of stress and burden often used to describe parents' experiences during the period of their son or daughter's transition to adulthood, needs to coexist with a language of fulfilment, growth and gain, as used by parents themselves. The implications of these findings, in relation to professional interaction with and support of parents in this period, are discussed. 2008 Journal Article http://hdl.handle.net/20.500.11937/41849 10.1111/j.1468-3148.2007.00367.x Wiley-Blackwell Publishing Ltd. restricted |
| spellingShingle | parents young adults benefit finding Rapanaro, Cher Bartu, Anne Lee, Andy Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood. |
| title | Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood. |
| title_full | Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood. |
| title_fullStr | Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood. |
| title_full_unstemmed | Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood. |
| title_short | Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood. |
| title_sort | perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood. |
| topic | parents young adults benefit finding |
| url | http://hdl.handle.net/20.500.11937/41849 |