Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service

QR Code

Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service

Objective: To obtain feedback from families of children receiving palliative and supportive care about their care needs in hospital and in community settings. Design: A two-phase combined quantitative and qualitative study. Setting: Western Australia. Participants: 134 parents and 20 service provide...

Full description

Bibliographic Details
Main Authors:	Monterosso, Leanne, Kristjanson, Linda, Aoun, Samar, Phillips, M.
Format:	Journal Article
Published:	Sage Science Press (UK) 2007
Online Access:	http://hdl.handle.net/20.500.11937/41190

Similar Items

Palliative Care for Families: Remembering the Hidden Patients
by: Kristjanson, Linda, et al.
Published: (2004)

Supportive and palliative care needs of families of children who die from cancer: an Australian study
by: Monterosso, Leanne, et al.
Published: (2008)

Challenging the framework for evidence in palliative care research
by: Aoun, Samar, et al.
Published: (2005)

A qualitative investigation of the palliative care needs of terminally ill people who live alone
by: Aoun, Samar, et al.
Published: (2008)

Palliative care needs of terminally ill people living alone: A service provider perspective
by: Aoun, Samar, et al.
Published: (2012)

Evidence in palliative care research: how should it be gathered?
by: Aoun, Samar, et al.
Published: (2005)

Paediatric Palliative Care
by: Monterosso, Leanne, et al.
Published: (2003)

Palliative care and young people
by: Monterosso, Leanne
Published: (2008)

Clinical support for families in the palliative care phase of hematologic or oncologic illness
by: Kristjanson, Linda, et al.
Published: (2002)

Information provision for palliative care families
by: Hudson, P., et al.
Published: (2004)

Reliability testing of FAMCARE-2 scale: measuring family carer satisfaction with palliative care
by: Aoun, Samar, et al.
Published: (2010)

Measuring Symptom Distress in Palliative Care: Psychometric Properties of Symptom Assessment Scale (SAS)
by: Aoun, Samar, et al.
Published: (2011)

Supportive and palliative care needs identified by multiple sclerosis patients and their families
by: Woolin, J., et al.
Published: (2006)

Terminally-ill people living alone without a caregiver: an Australian national scoping study of palliative care needs
by: Aoun, Samar, et al.
Published: (2007)

Palliative care and support for people with neurodegenerative conditions and their carers
by: Kristjanson, L., et al.
Published: (2006)

Qualitative research in palliative care
by: Kristjanson, Linda, et al.
Published: (2004)

Palliative care in Western Australia: an assessment of information and support needs
by: McConigley, Ruth, et al.
Published: (2001)

Predicting family caregiver psychosocial functioning in palliative care
by: Hudson, P., et al.
Published: (2006)

Family Caregiver Participation in Palliative Care Research: Challenging the Myth
by: Aoun, Samar, et al.
Published: (2017)

"But isn't it depressing?" The Vitality of Palliative Care
by: Webster, J., et al.
Published: (2002)

Expanding the Boundaries of Palliative Care: an Australian Perspective
by: Kristjanson, Linda
Published: (2005)

What palliative care can do for motor neurone disease patients and their families
by: Oliver, D., et al.
Published: (2013)

Occupational therapy in palliative care: Is it under-utilised in Western Australia?
by: Halkett, Georgia, et al.
Published: (2010)

Residential Aged Care : The last frontier for palliative care
by: Phillips, J., et al.
Published: (2006)

Implementation and evaluation of an education program to guide palliative care people with motor neurone disease.
by: McConigley, Ruth, et al.
Published: (2011)

Directions in Palliative Care Nursing Research: Impeccable Care, Timing and Complexity
by: Kristjanson, Linda
Published: (2005)

Bereavement and palliative care: A public health perspective
by: Rumbold, B., et al.
Published: (2014)

Degrading Landscapes: Lessons from Palliative Care
by: Kristjanson, Linda, et al.
Published: (2001)

A palliative approach to spirituality in residential aged care
by: Kristjanson, Linda
Published: (2006)

The Australian Palliative Care Outcomes Collaboration (PCOC) - measuring the quality and outcomes of palliative care on a routine basis.
by: Eagar, K., et al.
Published: (2010)

Professional relationships in palliative care decision making
by: Lee, S., et al.
Published: (2008)

Paramedics’ perceptions and educational needs with respect to palliative care
by: Rogers, I., et al.
Published: (2015)

Challenges in Palliative Care Research on Family Caregivers: Who Volunteers for Interviews?
by: Breen, Lauren, et al.
Published: (2021)

Palliative care for the aged community: An Australian perspective
by: Kristjanson, Linda, et al.
Published: (2007)

Palliative Care in Western Australia: Final Report December 2005
by: Kristjanson, Linda, et al.
Published: (2006)

Loss, grief and bereavement in palliative care: Research directions
by: Kristjanson, Linda, et al.
Published: (2004)

Minimising gate-keeping in palliative care research
by: Hudson, P., et al.
Published: (2005)

Palliative Care
by: Davidson, Patricia, et al.
Published: (2008)

Multi-faceted palliative care intervention: aged care nurses' and care assistants' perceptions and experiences
by: Phillips, J. L., et al.
Published: (2008)

Motor Neurone Disease family carers' experiences of caring, palliative care and bereavement: An exploratory qualitative study
by: Aoun, Samar, et al.
Published: (2012)

Cannot write session to /tmp/vufind_sessions/sess_jkfslv29rkcjdc38vohfhiqd65