A modified Delphi study of screening for fetal alcohol spectrum disorders in Australia

Background: There is little reliable information on the prevalence of fetal alcohol spectrum disorders (FASD) in Australia and no coordinated national approach to facilitate case detection. The aim of this study was to identify health professionals’ perceptions about screening for FASD in Australia....

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Main Authors: Watkins, R., Elliott, E., Halliday, J., O'Leary, Colleen marie, D'antoine, Heather, Russell, E., Hayes, L., Peadon, E., Wilkins, A., Jones, H., McKenzie, A., Miers, S., Burns, L., Mutch, R., Payne, J., Fitzpatrick, J., Carter, M., Latimer, J., Bower, C.
Format: Journal Article
Published: BioMed Central 2013
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Online Access:http://hdl.handle.net/20.500.11937/39705
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author Watkins, R.
Elliott, E.
Halliday, J.
O'Leary, Colleen marie
D'antoine, Heather
Russell, E.
Hayes, L.
Peadon, E.
Wilkins, A.
Jones, H.
McKenzie, A.
Miers, S.
Burns, L.
Mutch, R.
Payne, J.
Fitzpatrick, J.
Carter, M.
Latimer, J.
Bower, C.
author_facet Watkins, R.
Elliott, E.
Halliday, J.
O'Leary, Colleen marie
D'antoine, Heather
Russell, E.
Hayes, L.
Peadon, E.
Wilkins, A.
Jones, H.
McKenzie, A.
Miers, S.
Burns, L.
Mutch, R.
Payne, J.
Fitzpatrick, J.
Carter, M.
Latimer, J.
Bower, C.
author_sort Watkins, R.
building Curtin Institutional Repository
collection Online Access
description Background: There is little reliable information on the prevalence of fetal alcohol spectrum disorders (FASD) in Australia and no coordinated national approach to facilitate case detection. The aim of this study was to identify health professionals’ perceptions about screening for FASD in Australia. Method: A modified Delphi process was used to assess perceptions of the need for, and the process of, screening for FASD in Australia. We recruited a panel of 130 Australian health professionals with experience or expertise in FASD screening or diagnosis. A systematic review of the literature was used to develop Likert statements on screening coverage, components and assessment methods which were administered using an online survey over two survey rounds. Results: Of the panel members surveyed, 95 (73%) responded to the questions on screening in the first survey round and, of these, 81 (85%) responded to the second round. Following two rounds there was consensus agreement on the need for targeted screening at birth (76%) and in childhood (84%). Participants did not reach consensus agreement on the need for universal screening at birth (55%) or in childhood (40%). Support for targeted screening was linked to perceived constraints on service provision and the need to examine the performance, costs and benefits of screening. For targeted screening of high risk groups, we found highest agreement for siblings of known cases of FASD (96%) and children of mothers attending alcohol treatment services (93%). Participants agreed that screening for FASD primarily requires assessment of prenatal alcohol exposure at birth (86%) and in childhood (88%), and that a checklist is needed to identify the components of screening and criteria for referral at birth (84%) and in childhood (90%). Conclusions: There is an agreed need for targeted but not universal screening for FASD in Australia, and sufficient consensus among health professionals to warrant development and evaluation of standardised methods for targeted screening and referral in the Australian context. Participants emphasised the need for locally-appropriate, evidence-based approaches to facilitate case detection, and the importance of ensuring that screening and referral programs are supported by adequate diagnostic and management capacity.
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spelling curtin-20.500.11937-397052017-09-13T14:30:53Z A modified Delphi study of screening for fetal alcohol spectrum disorders in Australia Watkins, R. Elliott, E. Halliday, J. O'Leary, Colleen marie D'antoine, Heather Russell, E. Hayes, L. Peadon, E. Wilkins, A. Jones, H. McKenzie, A. Miers, S. Burns, L. Mutch, R. Payne, J. Fitzpatrick, J. Carter, M. Latimer, J. Bower, C. screening Delphi process Likert statements fetal alcohol spectrum disorders (FASD) Background: There is little reliable information on the prevalence of fetal alcohol spectrum disorders (FASD) in Australia and no coordinated national approach to facilitate case detection. The aim of this study was to identify health professionals’ perceptions about screening for FASD in Australia. Method: A modified Delphi process was used to assess perceptions of the need for, and the process of, screening for FASD in Australia. We recruited a panel of 130 Australian health professionals with experience or expertise in FASD screening or diagnosis. A systematic review of the literature was used to develop Likert statements on screening coverage, components and assessment methods which were administered using an online survey over two survey rounds. Results: Of the panel members surveyed, 95 (73%) responded to the questions on screening in the first survey round and, of these, 81 (85%) responded to the second round. Following two rounds there was consensus agreement on the need for targeted screening at birth (76%) and in childhood (84%). Participants did not reach consensus agreement on the need for universal screening at birth (55%) or in childhood (40%). Support for targeted screening was linked to perceived constraints on service provision and the need to examine the performance, costs and benefits of screening. For targeted screening of high risk groups, we found highest agreement for siblings of known cases of FASD (96%) and children of mothers attending alcohol treatment services (93%). Participants agreed that screening for FASD primarily requires assessment of prenatal alcohol exposure at birth (86%) and in childhood (88%), and that a checklist is needed to identify the components of screening and criteria for referral at birth (84%) and in childhood (90%). Conclusions: There is an agreed need for targeted but not universal screening for FASD in Australia, and sufficient consensus among health professionals to warrant development and evaluation of standardised methods for targeted screening and referral in the Australian context. Participants emphasised the need for locally-appropriate, evidence-based approaches to facilitate case detection, and the importance of ensuring that screening and referral programs are supported by adequate diagnostic and management capacity. 2013 Journal Article http://hdl.handle.net/20.500.11937/39705 10.1186/1471-2431-13-13 BioMed Central fulltext
spellingShingle screening
Delphi process
Likert statements
fetal alcohol spectrum disorders (FASD)
Watkins, R.
Elliott, E.
Halliday, J.
O'Leary, Colleen marie
D'antoine, Heather
Russell, E.
Hayes, L.
Peadon, E.
Wilkins, A.
Jones, H.
McKenzie, A.
Miers, S.
Burns, L.
Mutch, R.
Payne, J.
Fitzpatrick, J.
Carter, M.
Latimer, J.
Bower, C.
A modified Delphi study of screening for fetal alcohol spectrum disorders in Australia
title A modified Delphi study of screening for fetal alcohol spectrum disorders in Australia
title_full A modified Delphi study of screening for fetal alcohol spectrum disorders in Australia
title_fullStr A modified Delphi study of screening for fetal alcohol spectrum disorders in Australia
title_full_unstemmed A modified Delphi study of screening for fetal alcohol spectrum disorders in Australia
title_short A modified Delphi study of screening for fetal alcohol spectrum disorders in Australia
title_sort modified delphi study of screening for fetal alcohol spectrum disorders in australia
topic screening
Delphi process
Likert statements
fetal alcohol spectrum disorders (FASD)
url http://hdl.handle.net/20.500.11937/39705