Identifying and addressing the support needs of family caregivers of people with motor neurone disease using the Carer Support Needs Assessment Tool

QR Code

Identifying and addressing the support needs of family caregivers of people with motor neurone disease using the Carer Support Needs Assessment Tool

Family caregivers of people with motor neurone disease (MND) experience adverse health outcomes as a result of their caregiving experience. This may be alleviated if their support needs are identified and addressed in a systematic and timely manner. The objective of the present study was to assess t...

Full description

Bibliographic Details
Main Authors:	Aoun, Samar, Deas, K., Kristjanson, L., Kissane, D.
Format:	Journal Article
Published:	Cambridge University Press 2017
Online Access:	http://hdl.handle.net/20.500.11937/39651

Similar Items

Dignity therapy for people with motor neuron disease and their family caregivers: A feasibility study
by: Aoun, Samar, et al.
Published: (2015)

Supporting family caregivers to identify their own needs in end-of-life care: Qualitative findings from a stepped wedge cluster trial
by: Aoun, Samar, et al.
Published: (2015)

Identifying and Supporting the Needs of People with Dementia and Their Families - Strengthening Communication Skills for Formal Carers
by: Morrisby, Claire
Published: (2020)

Exploring the Support Needs of Family Caregivers of Patients with Brain Cancer Using the CSNAT: A Comparative Study with Other Cancer Groups
by: Aoun, Samar, et al.
Published: (2015)

Palliative care and support for people with neurodegenerative conditions and their carers
by: Kristjanson, L., et al.
Published: (2006)

Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?
by: Bentley, B., et al.
Published: (2012)

Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practice.
by: Aoun, Samar, et al.
Published: (2015)

A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia
by: Aoun, Samar, et al.
Published: (2018)

Motor Neurone Disease family carers' experiences of caring, palliative care and bereavement: An exploratory qualitative study
by: Aoun, Samar, et al.
Published: (2012)

The End-of-Life Experiences of People with Motor Neuron Disease: Family Carers' Perspectives
by: Bentley, B., et al.
Published: (2016)

Supportive and palliative care needs identified by multiple sclerosis patients and their families
by: Woolin, J., et al.
Published: (2006)

Are supportive services meeting the needs of Australians with neurodegenerative conditions and their tamilies
by: Kristjanson, Linda, et al.
Published: (2006)

The impact of the carer support needs assessment tool (CSNAT) in community palliative care using a stepped wedge cluster trial
by: Aoun, Samar, et al.
Published: (2015)

‘The shock of diagnosis’: Qualitative accounts from people with Motor Neurone Disease reflecting the need for more person-centred care
by: Aoun, Samar, et al.
Published: (2018)

A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions
by: Aoun, Samar, et al.
Published: (2012)

Family carers' experiences of receiving the news of a diagnosis of Motor Neurone Disease: A national survey
by: Aoun, Samar, et al.
Published: (2017)

Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease
by: Bentley, Brenda, et al.
Published: (2014)

Implementation and evaluation of an education program to guide palliative care people with motor neurone disease.
by: McConigley, Ruth, et al.
Published: (2011)

The support needs of terminally ill people living alone at home: a narrative review
by: Aoun, Samar, et al.
Published: (2014)

Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease—“Our life has changed forever”
by: O'Connor, M., et al.
Published: (2018)

What palliative care can do for motor neurone disease patients and their families
by: Oliver, D., et al.
Published: (2013)

The experience of supporting a dying relative: reflections of caregivers
by: Aoun, Samar, et al.
Published: (2005)

Terminally-ill people living alone without a caregiver: an Australian national scoping study of palliative care needs
by: Aoun, Samar, et al.
Published: (2007)

Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service
by: Monterosso, Leanne, et al.
Published: (2007)

Who needs bereavement support? A population based survey of bereavement risk and support need
by: Aoun, Samar, et al.
Published: (2015)

Family Caregiver Participation in Palliative Care Research: Challenging the Myth
by: Aoun, Samar, et al.
Published: (2017)

Mapping the Journey: Family Carers' Perceptions of Issues Related to End-Stage Care of Individuals with Muscular Dystrophy or Motor Neurone Disease
by: Dawson, Susan, et al.
Published: (2003)

Bereavement support for family caregivers: The gap between guidelines and practice in palliative care
by: Aoun, Samar, et al.
Published: (2017)

Identifying needs, burden, and distress of carers of people with Frontotemporal dementia compared to Alzheimer’s disease
by: Nicolaou, Paula, et al.
Published: (2010)

Protocol for a randomised controlled trial of an outreach support program for family carers of older people discharged from hospital
by: Toye, Christine, et al.
Published: (2015)

The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children
by: D’Arcy, Emily, et al.
Published: (2023)

Which carers of family members at the end of life need more support from health services and why?
by: McNamara, Beverley, et al.
Published: (2010)

Dignity therapy: a psychotherapeutic intervention to enhance the end of life experience for people with Motor Neurone Disease and their family carers
by: Bentley, Brenda
Published: (2014)

Caregivers of People with Neurodegenerative Diseases: Profile and Unmet Needs from a Population-Based Survey in South Australia
by: Aoun, Samar, et al.
Published: (2010)

Exploring the needs of family caregivers: preliminary findings
by: Othman, Hamidah, et al.
Published: (2018)

Grandparent carers: identifying health and social service gaps and needs
by: Coall, David, et al.
Published: (2018)

Reliability testing of FAMCARE-2 scale: measuring family carer satisfaction with palliative care
by: Aoun, Samar, et al.
Published: (2010)

The Impact of Supporting Family Caregivers Before Bereavement on Outcomes After Bereavement: Adequacy of End-of-Life Support and Achievement of Preferred Place of Death
by: Aoun, Samar, et al.
Published: (2018)

Educational needs of family caregiver of stroke patients as perceived by the family
by: Zin, Afiqah Mat
Published: (2012)

A qualitative investigation of the palliative care needs of terminally ill people who live alone
by: Aoun, Samar, et al.
Published: (2008)