Paediatric end-of-life care needs in Switzerland: Current practices, and perspectives from parents and professionals. A study protocol
Aim: To present a protocol for a multi-phase study about the current practice of end-of-life care in paediatric settings in Switzerland. Background: In Switzerland, paediatric palliative care is usually provided by teams, who may not necessarily have specific training. There is a lack of systematic...
| Main Authors: | , , , , , |
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| Format: | Journal Article |
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Blackwell Publishing Ltd
2015
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| Online Access: | http://hdl.handle.net/20.500.11937/3947 |
| _version_ | 1848744375359635456 |
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| author | Bergstraesser, E. Zimmermann, K. Eskola, K. Luck, P. Ramelet, Anne-Sylvie Cignacco, E. |
| author_facet | Bergstraesser, E. Zimmermann, K. Eskola, K. Luck, P. Ramelet, Anne-Sylvie Cignacco, E. |
| author_sort | Bergstraesser, E. |
| building | Curtin Institutional Repository |
| collection | Online Access |
| description | Aim: To present a protocol for a multi-phase study about the current practice of end-of-life care in paediatric settings in Switzerland. Background: In Switzerland, paediatric palliative care is usually provided by teams, who may not necessarily have specific training. There is a lack of systematic data about specific aspects of care at the end of a child's life, such as symptom management, involvement of parents in decision-making and family-centred care and experiences and needs of parents, and perspectives of healthcare professionals. Design: This retrospective nationwide multicentre study, Paediatric End-of-LIfe CAre Needs in Switzerland (PELICAN), combines quantitative and qualitative methods of enquiry. Methods: The PELICAN study consists of three observational parts, PELICAN I describes practices of end-of-life care (defined as the last 4 weeks of life) in the hospital and home care setting of children (0-18 years) who died in the years 2011-2012 due to a cardiac, neurological or oncological disease, or who died in the neonatal period. PELICAN II assesses the experiences and needs of parents during the end-of-life phase of their child. PELICAN III focuses on healthcare professionals and explores their perspectives concerning the provision of end-of-life care. Conclusion: This first study across Switzerland will provide comprehensive insight into the current end-of-life care in children with distinct diagnoses and the perspectives of affected parents and health professionals. The results may facilitate the development and implementation of programmes for end-of-life care in children across Switzerland, building on real experiences and needs. |
| first_indexed | 2025-11-14T06:00:28Z |
| format | Journal Article |
| id | curtin-20.500.11937-3947 |
| institution | Curtin University Malaysia |
| institution_category | Local University |
| last_indexed | 2025-11-14T06:00:28Z |
| publishDate | 2015 |
| publisher | Blackwell Publishing Ltd |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | curtin-20.500.11937-39472017-09-13T14:31:37Z Paediatric end-of-life care needs in Switzerland: Current practices, and perspectives from parents and professionals. A study protocol Bergstraesser, E. Zimmermann, K. Eskola, K. Luck, P. Ramelet, Anne-Sylvie Cignacco, E. Aim: To present a protocol for a multi-phase study about the current practice of end-of-life care in paediatric settings in Switzerland. Background: In Switzerland, paediatric palliative care is usually provided by teams, who may not necessarily have specific training. There is a lack of systematic data about specific aspects of care at the end of a child's life, such as symptom management, involvement of parents in decision-making and family-centred care and experiences and needs of parents, and perspectives of healthcare professionals. Design: This retrospective nationwide multicentre study, Paediatric End-of-LIfe CAre Needs in Switzerland (PELICAN), combines quantitative and qualitative methods of enquiry. Methods: The PELICAN study consists of three observational parts, PELICAN I describes practices of end-of-life care (defined as the last 4 weeks of life) in the hospital and home care setting of children (0-18 years) who died in the years 2011-2012 due to a cardiac, neurological or oncological disease, or who died in the neonatal period. PELICAN II assesses the experiences and needs of parents during the end-of-life phase of their child. PELICAN III focuses on healthcare professionals and explores their perspectives concerning the provision of end-of-life care. Conclusion: This first study across Switzerland will provide comprehensive insight into the current end-of-life care in children with distinct diagnoses and the perspectives of affected parents and health professionals. The results may facilitate the development and implementation of programmes for end-of-life care in children across Switzerland, building on real experiences and needs. 2015 Journal Article http://hdl.handle.net/20.500.11937/3947 10.1111/jan.12650 Blackwell Publishing Ltd unknown |
| spellingShingle | Bergstraesser, E. Zimmermann, K. Eskola, K. Luck, P. Ramelet, Anne-Sylvie Cignacco, E. Paediatric end-of-life care needs in Switzerland: Current practices, and perspectives from parents and professionals. A study protocol |
| title | Paediatric end-of-life care needs in Switzerland: Current practices, and perspectives from parents and professionals. A study protocol |
| title_full | Paediatric end-of-life care needs in Switzerland: Current practices, and perspectives from parents and professionals. A study protocol |
| title_fullStr | Paediatric end-of-life care needs in Switzerland: Current practices, and perspectives from parents and professionals. A study protocol |
| title_full_unstemmed | Paediatric end-of-life care needs in Switzerland: Current practices, and perspectives from parents and professionals. A study protocol |
| title_short | Paediatric end-of-life care needs in Switzerland: Current practices, and perspectives from parents and professionals. A study protocol |
| title_sort | paediatric end-of-life care needs in switzerland: current practices, and perspectives from parents and professionals. a study protocol |
| url | http://hdl.handle.net/20.500.11937/3947 |