Paternal experiences of their children’s diagnosis of Cystic Fibrosis following newborn screening diagnosis
Background: Fathers are a neglected group in parenting research, yet they have significant influence on family systems. This paper reports on the experiences of a group of fathers as they manage the impact on the family of the chronic medical challenge of Cystic Fibrosis (CF) in their child.Method:...
| Main Authors: | , , , , |
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| Format: | Journal Article |
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Cambridge Publishing
2010
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| Online Access: | http://hdl.handle.net/20.500.11937/30803 |
| _version_ | 1848753194373480448 |
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| author | Priddis, Lynn Dunwoodie, Jane Balding, E. Barrett, A. Douglas, T. |
| author_facet | Priddis, Lynn Dunwoodie, Jane Balding, E. Barrett, A. Douglas, T. |
| author_sort | Priddis, Lynn |
| building | Curtin Institutional Repository |
| collection | Online Access |
| description | Background: Fathers are a neglected group in parenting research, yet they have significant influence on family systems. This paper reports on the experiences of a group of fathers as they manage the impact on the family of the chronic medical challenge of Cystic Fibrosis (CF) in their child.Method: Fifteen fathers of children diagnosed with CF under the newborn screening (NBS) procedures in Western Australia (WA) participated in semi-structured interviews. The transcribed interviews were analysed for common themes using qualitative content analysis, following established procedures for process and rigour. Results: Receipt of a diagnosis of CF for a child altered relationships within the family system. Fathers in this study mostly used internalised and pragmatic coping strategies to assist them to manage anxiety and to come to terms with their child’s diagnosis. These strategies allowed these fathers to shift their focus from the crisis of diagnosis to the functioning of their family. Conclusions: Fathers play an important protective role in families, often so well that their own needs for support are overlooked. Clinical implications are discussed. |
| first_indexed | 2025-11-14T08:20:38Z |
| format | Journal Article |
| id | curtin-20.500.11937-30803 |
| institution | Curtin University Malaysia |
| institution_category | Local University |
| last_indexed | 2025-11-14T08:20:38Z |
| publishDate | 2010 |
| publisher | Cambridge Publishing |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | curtin-20.500.11937-308032017-01-30T13:21:37Z Paternal experiences of their children’s diagnosis of Cystic Fibrosis following newborn screening diagnosis Priddis, Lynn Dunwoodie, Jane Balding, E. Barrett, A. Douglas, T. Background: Fathers are a neglected group in parenting research, yet they have significant influence on family systems. This paper reports on the experiences of a group of fathers as they manage the impact on the family of the chronic medical challenge of Cystic Fibrosis (CF) in their child.Method: Fifteen fathers of children diagnosed with CF under the newborn screening (NBS) procedures in Western Australia (WA) participated in semi-structured interviews. The transcribed interviews were analysed for common themes using qualitative content analysis, following established procedures for process and rigour. Results: Receipt of a diagnosis of CF for a child altered relationships within the family system. Fathers in this study mostly used internalised and pragmatic coping strategies to assist them to manage anxiety and to come to terms with their child’s diagnosis. These strategies allowed these fathers to shift their focus from the crisis of diagnosis to the functioning of their family. Conclusions: Fathers play an important protective role in families, often so well that their own needs for support are overlooked. Clinical implications are discussed. 2010 Journal Article http://hdl.handle.net/20.500.11937/30803 Cambridge Publishing restricted |
| spellingShingle | Priddis, Lynn Dunwoodie, Jane Balding, E. Barrett, A. Douglas, T. Paternal experiences of their children’s diagnosis of Cystic Fibrosis following newborn screening diagnosis |
| title | Paternal experiences of their children’s diagnosis of Cystic Fibrosis following newborn screening diagnosis |
| title_full | Paternal experiences of their children’s diagnosis of Cystic Fibrosis following newborn screening diagnosis |
| title_fullStr | Paternal experiences of their children’s diagnosis of Cystic Fibrosis following newborn screening diagnosis |
| title_full_unstemmed | Paternal experiences of their children’s diagnosis of Cystic Fibrosis following newborn screening diagnosis |
| title_short | Paternal experiences of their children’s diagnosis of Cystic Fibrosis following newborn screening diagnosis |
| title_sort | paternal experiences of their children’s diagnosis of cystic fibrosis following newborn screening diagnosis |
| url | http://hdl.handle.net/20.500.11937/30803 |