A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units

Purpose: To explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU). Method: Qualitative method using in-depth interviews. Thematic analysis was applied to capture parents' experiences. Thirty-nine mothers and 25 fathers of 41 children...

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Main Authors: Latour, Jos, van Goudoever, J., Schuurman, B., Albers, M., van Dam, N., Dullaart, E., van Heerde, M., Verlaat, C., van Vught, E., Hazelzet, J.
Format: Journal Article
Published: 2011
Online Access:http://hdl.handle.net/20.500.11937/30482
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author Latour, Jos
van Goudoever, J.
Schuurman, B.
Albers, M.
van Dam, N.
Dullaart, E.
van Heerde, M.
Verlaat, C.
van Vught, E.
Hazelzet, J.
author_facet Latour, Jos
van Goudoever, J.
Schuurman, B.
Albers, M.
van Dam, N.
Dullaart, E.
van Heerde, M.
Verlaat, C.
van Vught, E.
Hazelzet, J.
author_sort Latour, Jos
building Curtin Institutional Repository
collection Online Access
description Purpose: To explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU). Method: Qualitative method using in-depth interviews. Thematic analysis was applied to capture parents' experiences. Thirty-nine mothers and 25 fathers of 41 children admitted to seven of the eight PICUs in university medical centers in The Netherlands were interviewed. Results: Parents were interviewed within 1 month after their child's discharge from a PICU. Thematic analysis identified 1,514 quotations that were coded into 63 subthemes. The subthemes were categorized into six major themes: attitude of the professionals; coordination of care; emotional intensity; information management; environmental factors; parent participation. Most themes had an overarching relationship representing the array of experiences encountered by parents when their child was staying in a PICU. The theme of emotional intensity was in particular associated with all the other themes. Conclusions: The findings provided a range of themes and subthemes describing the complexity of the parental experiences of a PICU admission. The subthemes present a systematic and thematic basis for the development of a quantitative instrument to measure parental experiences and satisfaction with care. The findings of this study have important clinical implications related to the deeper understanding of parental experiences and improving family-centered care.
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spelling curtin-20.500.11937-304822017-09-13T15:32:24Z A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units Latour, Jos van Goudoever, J. Schuurman, B. Albers, M. van Dam, N. Dullaart, E. van Heerde, M. Verlaat, C. van Vught, E. Hazelzet, J. Purpose: To explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU). Method: Qualitative method using in-depth interviews. Thematic analysis was applied to capture parents' experiences. Thirty-nine mothers and 25 fathers of 41 children admitted to seven of the eight PICUs in university medical centers in The Netherlands were interviewed. Results: Parents were interviewed within 1 month after their child's discharge from a PICU. Thematic analysis identified 1,514 quotations that were coded into 63 subthemes. The subthemes were categorized into six major themes: attitude of the professionals; coordination of care; emotional intensity; information management; environmental factors; parent participation. Most themes had an overarching relationship representing the array of experiences encountered by parents when their child was staying in a PICU. The theme of emotional intensity was in particular associated with all the other themes. Conclusions: The findings provided a range of themes and subthemes describing the complexity of the parental experiences of a PICU admission. The subthemes present a systematic and thematic basis for the development of a quantitative instrument to measure parental experiences and satisfaction with care. The findings of this study have important clinical implications related to the deeper understanding of parental experiences and improving family-centered care. 2011 Journal Article http://hdl.handle.net/20.500.11937/30482 10.1007/s00134-010-2074-3 fulltext
spellingShingle Latour, Jos
van Goudoever, J.
Schuurman, B.
Albers, M.
van Dam, N.
Dullaart, E.
van Heerde, M.
Verlaat, C.
van Vught, E.
Hazelzet, J.
A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units
title A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units
title_full A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units
title_fullStr A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units
title_full_unstemmed A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units
title_short A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units
title_sort qualitative study exploring the experiences of parents of children admitted to seven dutch pediatric intensive care units
url http://hdl.handle.net/20.500.11937/30482