Family functioning in families with a child with Down syndrome: A mixed methods approach
Background: This study aimed to explore the factors that predict functioning in families with a child with Down syndrome using a mixed methods design. The quantitative component examined the effect of maladaptive and autism-spectrum behaviours on the functioning of the family while the qualitative...
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| Format: | Journal Article |
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Wiley-Blackwell Publishing Ltd
2012
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| Online Access: | http://hdl.handle.net/20.500.11937/28169 |
| _version_ | 1848752463596748800 |
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| author | Povee, Kate Roberts, Lynne Bourke, J. Leonard, H. |
| author_facet | Povee, Kate Roberts, Lynne Bourke, J. Leonard, H. |
| author_sort | Povee, Kate |
| building | Curtin Institutional Repository |
| collection | Online Access |
| description | Background: This study aimed to explore the factors that predict functioning in families with a child with Down syndrome using a mixed methods design. The quantitative component examined the effect of maladaptive and autism-spectrum behaviours on the functioning of the family while the qualitative component explored the impact of having a child with Down syndrome on family holidays, family activities and general family functioning. Methods: Participants in this study were 224 primary caregivers of children with Down syndrome aged 4–25 years (57.1% male; 42.9% female) currently residing in Western Australia (74.0% in metropolitan Perth and 26.0% in rural Western Australia). Results: Maladaptive and autism-spectrum behaviour were associated with poorer family functioning. Mean total scores on the measures of family functioning and marital adjustment were comparable to that of families of typically developing children. Consistent with the quantitative findings, normality was the most common theme to emerge in the qualitative data. Child problem behaviours were also identified by parents/carers as having a negative impact on the family. Conclusions: This study has implications for the development of programs to support families with a child with Down syndrome and may dispel some of the myths surrounding the impact of intellectual disability on the family. |
| first_indexed | 2025-11-14T08:09:01Z |
| format | Journal Article |
| id | curtin-20.500.11937-28169 |
| institution | Curtin University Malaysia |
| institution_category | Local University |
| last_indexed | 2025-11-14T08:09:01Z |
| publishDate | 2012 |
| publisher | Wiley-Blackwell Publishing Ltd |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | curtin-20.500.11937-281692017-09-13T15:52:04Z Family functioning in families with a child with Down syndrome: A mixed methods approach Povee, Kate Roberts, Lynne Bourke, J. Leonard, H. Background: This study aimed to explore the factors that predict functioning in families with a child with Down syndrome using a mixed methods design. The quantitative component examined the effect of maladaptive and autism-spectrum behaviours on the functioning of the family while the qualitative component explored the impact of having a child with Down syndrome on family holidays, family activities and general family functioning. Methods: Participants in this study were 224 primary caregivers of children with Down syndrome aged 4–25 years (57.1% male; 42.9% female) currently residing in Western Australia (74.0% in metropolitan Perth and 26.0% in rural Western Australia). Results: Maladaptive and autism-spectrum behaviour were associated with poorer family functioning. Mean total scores on the measures of family functioning and marital adjustment were comparable to that of families of typically developing children. Consistent with the quantitative findings, normality was the most common theme to emerge in the qualitative data. Child problem behaviours were also identified by parents/carers as having a negative impact on the family. Conclusions: This study has implications for the development of programs to support families with a child with Down syndrome and may dispel some of the myths surrounding the impact of intellectual disability on the family. 2012 Journal Article http://hdl.handle.net/20.500.11937/28169 10.1111/j.1365-2788.2012.01561.x Wiley-Blackwell Publishing Ltd restricted |
| spellingShingle | Povee, Kate Roberts, Lynne Bourke, J. Leonard, H. Family functioning in families with a child with Down syndrome: A mixed methods approach |
| title | Family functioning in families with a child with Down syndrome: A mixed methods approach |
| title_full | Family functioning in families with a child with Down syndrome: A mixed methods approach |
| title_fullStr | Family functioning in families with a child with Down syndrome: A mixed methods approach |
| title_full_unstemmed | Family functioning in families with a child with Down syndrome: A mixed methods approach |
| title_short | Family functioning in families with a child with Down syndrome: A mixed methods approach |
| title_sort | family functioning in families with a child with down syndrome: a mixed methods approach |
| url | http://hdl.handle.net/20.500.11937/28169 |