Counting Fetal Alcohol Spectrum Disorder in Australia: the evidence and the challenges

Issues: Alcohol exposure in utero is associated with a range of adverse outcomes in pregnancy and can cause long-term disability. Fetal alcohol spectrum disorder (FASD) is an umbrella term to describe a range of effects from prenatal alcohol exposure including fetal alcohol syndrome (FAS). Determini...

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Main Authors: Burns, L., Breen, C., Bower, C., O'Leary, Colleen, Elliott, E.
Format: Journal Article
Published: Wiley-Blackwell Publishing Ltd. 2013
Subjects:
Online Access:http://hdl.handle.net/20.500.11937/26876
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author Burns, L.
Breen, C.
Bower, C.
O'Leary, Colleen
Elliott, E.
author_facet Burns, L.
Breen, C.
Bower, C.
O'Leary, Colleen
Elliott, E.
author_sort Burns, L.
building Curtin Institutional Repository
collection Online Access
description Issues: Alcohol exposure in utero is associated with a range of adverse outcomes in pregnancy and can cause long-term disability. Fetal alcohol spectrum disorder (FASD) is an umbrella term to describe a range of effects from prenatal alcohol exposure including fetal alcohol syndrome (FAS). Determining the prevalence of FASD is challenging.Approach: This narrative review collates information on the prevalence of FASD in Australia and documents the various methods used for attaining estimates and the limitations of the available data.Key Findings: Birth prevalence of FASD is most commonly measured through clinic-based studies, passive surveillance systems and active case ascertainment. Alcohol use in pregnancy and FAS in Australia is predominantly monitored through passive surveillance systems and under-ascertainment of cases is likely. State- and territory-based studies have reported birth prevalence rates of FAS of between 0.01 and 0.68 per 1000 live births. Prevalence rates of FASD have not been estimated in Australia. As reflected in the international data, Australian studies have found higher rates of FAS among some Indigenous communities. This likely reflects patterns of alcohol use and other socioeconomic risk factors.Implications: Under-recognition of FASD reflects incomplete and inconsistent data collections recording alcohol use in pregnancy, lack of awareness among health professionals and a lack of diagnostic and support services.Conclusion: Accurate measurement of FASD prevalence is crucial to inform policy, resource and service development in the areas of health, education, justice and community. There is a need for consensus on the collection and best use of data.
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spelling curtin-20.500.11937-268762017-09-13T15:30:00Z Counting Fetal Alcohol Spectrum Disorder in Australia: the evidence and the challenges Burns, L. Breen, C. Bower, C. O'Leary, Colleen Elliott, E. FASD alcohol pregnancy Issues: Alcohol exposure in utero is associated with a range of adverse outcomes in pregnancy and can cause long-term disability. Fetal alcohol spectrum disorder (FASD) is an umbrella term to describe a range of effects from prenatal alcohol exposure including fetal alcohol syndrome (FAS). Determining the prevalence of FASD is challenging.Approach: This narrative review collates information on the prevalence of FASD in Australia and documents the various methods used for attaining estimates and the limitations of the available data.Key Findings: Birth prevalence of FASD is most commonly measured through clinic-based studies, passive surveillance systems and active case ascertainment. Alcohol use in pregnancy and FAS in Australia is predominantly monitored through passive surveillance systems and under-ascertainment of cases is likely. State- and territory-based studies have reported birth prevalence rates of FAS of between 0.01 and 0.68 per 1000 live births. Prevalence rates of FASD have not been estimated in Australia. As reflected in the international data, Australian studies have found higher rates of FAS among some Indigenous communities. This likely reflects patterns of alcohol use and other socioeconomic risk factors.Implications: Under-recognition of FASD reflects incomplete and inconsistent data collections recording alcohol use in pregnancy, lack of awareness among health professionals and a lack of diagnostic and support services.Conclusion: Accurate measurement of FASD prevalence is crucial to inform policy, resource and service development in the areas of health, education, justice and community. There is a need for consensus on the collection and best use of data. 2013 Journal Article http://hdl.handle.net/20.500.11937/26876 10.1111/dar.12047 Wiley-Blackwell Publishing Ltd. restricted
spellingShingle FASD
alcohol
pregnancy
Burns, L.
Breen, C.
Bower, C.
O'Leary, Colleen
Elliott, E.
Counting Fetal Alcohol Spectrum Disorder in Australia: the evidence and the challenges
title Counting Fetal Alcohol Spectrum Disorder in Australia: the evidence and the challenges
title_full Counting Fetal Alcohol Spectrum Disorder in Australia: the evidence and the challenges
title_fullStr Counting Fetal Alcohol Spectrum Disorder in Australia: the evidence and the challenges
title_full_unstemmed Counting Fetal Alcohol Spectrum Disorder in Australia: the evidence and the challenges
title_short Counting Fetal Alcohol Spectrum Disorder in Australia: the evidence and the challenges
title_sort counting fetal alcohol spectrum disorder in australia: the evidence and the challenges
topic FASD
alcohol
pregnancy
url http://hdl.handle.net/20.500.11937/26876