"If i knew then what i know now": Parents' reflections on raising a child with cerebral palsy
In this study we investigated experiences of parents of children with cerebral palsy (CP) to identify areas in which health care providers and educators could improve practice. A second objective was to create educational material for parents of young children newly diagnosed with CP. A purposive sa...
| Main Authors: | , , , , , , |
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| Format: | Journal Article |
| Published: |
2011
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| Online Access: | http://hdl.handle.net/20.500.11937/22292 |
| _version_ | 1848750829445578752 |
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| author | Reid, Alison Imrie, H. Brouwer, E. Clutton, S. Evans, J. Russell, D. Bartlett, D. |
| author_facet | Reid, Alison Imrie, H. Brouwer, E. Clutton, S. Evans, J. Russell, D. Bartlett, D. |
| author_sort | Reid, Alison |
| building | Curtin Institutional Repository |
| collection | Online Access |
| description | In this study we investigated experiences of parents of children with cerebral palsy (CP) to identify areas in which health care providers and educators could improve practice. A second objective was to create educational material for parents of young children newly diagnosed with CP. A purposive sample of nine parents, who previously participated in the Adolescent Study of Quality of Life, Mobility, and Exercise, was recruited through phone. During an interview, parents reflected on the experience of raising a child with CP from birth to young adulthood. These interviews were audiotaped, transcribed, and coded using the International Classification of Functioning, Disability and Health-informed model and analyzed to identify major themes. Parents elaborated upon what was helpful and what could be changed to improve their children's and families' experiences through supports, advocacy, and education at different levels. The results informed the development of tips for parents and children with CP to enhance their families' experiences and interactions with health care providers, educators, and others. © 2011 by Informa Healthcare USA, Inc. |
| first_indexed | 2025-11-14T07:43:03Z |
| format | Journal Article |
| id | curtin-20.500.11937-22292 |
| institution | Curtin University Malaysia |
| institution_category | Local University |
| last_indexed | 2025-11-14T07:43:03Z |
| publishDate | 2011 |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | curtin-20.500.11937-222922017-09-13T13:54:25Z "If i knew then what i know now": Parents' reflections on raising a child with cerebral palsy Reid, Alison Imrie, H. Brouwer, E. Clutton, S. Evans, J. Russell, D. Bartlett, D. In this study we investigated experiences of parents of children with cerebral palsy (CP) to identify areas in which health care providers and educators could improve practice. A second objective was to create educational material for parents of young children newly diagnosed with CP. A purposive sample of nine parents, who previously participated in the Adolescent Study of Quality of Life, Mobility, and Exercise, was recruited through phone. During an interview, parents reflected on the experience of raising a child with CP from birth to young adulthood. These interviews were audiotaped, transcribed, and coded using the International Classification of Functioning, Disability and Health-informed model and analyzed to identify major themes. Parents elaborated upon what was helpful and what could be changed to improve their children's and families' experiences through supports, advocacy, and education at different levels. The results informed the development of tips for parents and children with CP to enhance their families' experiences and interactions with health care providers, educators, and others. © 2011 by Informa Healthcare USA, Inc. 2011 Journal Article http://hdl.handle.net/20.500.11937/22292 10.3109/01942638.2010.540311 restricted |
| spellingShingle | Reid, Alison Imrie, H. Brouwer, E. Clutton, S. Evans, J. Russell, D. Bartlett, D. "If i knew then what i know now": Parents' reflections on raising a child with cerebral palsy |
| title | "If i knew then what i know now": Parents' reflections on raising a child with cerebral palsy |
| title_full | "If i knew then what i know now": Parents' reflections on raising a child with cerebral palsy |
| title_fullStr | "If i knew then what i know now": Parents' reflections on raising a child with cerebral palsy |
| title_full_unstemmed | "If i knew then what i know now": Parents' reflections on raising a child with cerebral palsy |
| title_short | "If i knew then what i know now": Parents' reflections on raising a child with cerebral palsy |
| title_sort | "if i knew then what i know now": parents' reflections on raising a child with cerebral palsy |
| url | http://hdl.handle.net/20.500.11937/22292 |