How can clinical ethics guide the management of comorbidities in the child with Rett syndrome?

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How can clinical ethics guide the management of comorbidities in the child with Rett syndrome?

Rett syndrome is a rare disorder caused by a mutation in the MECP2 gene. Those affected generally have severe functional impairments, and medical comorbidities such as scoliosis and poor growth are common. There is a paucity of information on the natural history of many rare disorders and an even gr...

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Bibliographic Details
Main Authors:	Downs, Jennepher, Forbes, D., Johnson, M., Leonard, H.
Format:	Journal Article
Published:	Wiley-Blackwell Publishing Ltd. 2016
Online Access:	http://hdl.handle.net/20.500.11937/22041

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