Reducing the psychological distress of family caregivers of home based palliative care patients: Longer term effects from a randomised controlled trial

Psycho-Oncology published by John Wiley & Sons Ltd. Background: Palliative care incorporates comprehensive support of family caregivers because many of them experience burden and distress. However, evidence-based support initiatives are few. Purpose: We evaluated a one-to-one psychoeducational i...

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Main Authors: Hudson, P., Trauer, T., Kelly, B., O'Connor, Moira, Thomas, K., Zordan, R., Summers, M.
Format: Journal Article
Published: John Wiley and Sons Ltd 2015
Online Access:http://hdl.handle.net/20.500.11937/20888
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author Hudson, P.
Trauer, T.
Kelly, B.
O'Connor, Moira
Thomas, K.
Zordan, R.
Summers, M.
author_facet Hudson, P.
Trauer, T.
Kelly, B.
O'Connor, Moira
Thomas, K.
Zordan, R.
Summers, M.
author_sort Hudson, P.
building Curtin Institutional Repository
collection Online Access
description Psycho-Oncology published by John Wiley & Sons Ltd. Background: Palliative care incorporates comprehensive support of family caregivers because many of them experience burden and distress. However, evidence-based support initiatives are few. Purpose: We evaluated a one-to-one psychoeducational intervention aimed at mitigating the distress of caregivers of patients with advanced cancer receiving home-based palliative care. We hypothesised that caregivers would report decreased distress as assessed by the General Health Questionnaire (GHQ). Method: A randomised controlled trial comparing two versions of the delivery of the intervention (one face-to-face home visit plus telephone calls versus two visits) plus standard care to a control group (standard care only) across four sites in Australia. Results: Recruitment to the one visit condition was 57, the two visit condition 93, and the control 148. We previously reported non-signi fi cant changes in distress between times 1 (baseline) and 2 (1-week post-intervention) but signifi cant gains in competence and preparedness. We report here changes in distress between times 1 and 3 (8-week post-death). There was significantly less worsening in distress between times 1 and 3 in the one visit intervention group than in the control group; however, no significant difference was found between the two visit intervention and the control group. Conclusions: These results are consistent with the aim of the intervention, and they support existing evidence demonstrating that relatively short psychoeducational interventions can help family caregivers who are supporting a dying relative. The sustained benefit during the bereavement period may also have positive resource implications, which should be the subject of future inquiry.
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spelling curtin-20.500.11937-208882019-03-28T06:23:34Z Reducing the psychological distress of family caregivers of home based palliative care patients: Longer term effects from a randomised controlled trial Hudson, P. Trauer, T. Kelly, B. O'Connor, Moira Thomas, K. Zordan, R. Summers, M. Psycho-Oncology published by John Wiley & Sons Ltd. Background: Palliative care incorporates comprehensive support of family caregivers because many of them experience burden and distress. However, evidence-based support initiatives are few. Purpose: We evaluated a one-to-one psychoeducational intervention aimed at mitigating the distress of caregivers of patients with advanced cancer receiving home-based palliative care. We hypothesised that caregivers would report decreased distress as assessed by the General Health Questionnaire (GHQ). Method: A randomised controlled trial comparing two versions of the delivery of the intervention (one face-to-face home visit plus telephone calls versus two visits) plus standard care to a control group (standard care only) across four sites in Australia. Results: Recruitment to the one visit condition was 57, the two visit condition 93, and the control 148. We previously reported non-signi fi cant changes in distress between times 1 (baseline) and 2 (1-week post-intervention) but signifi cant gains in competence and preparedness. We report here changes in distress between times 1 and 3 (8-week post-death). There was significantly less worsening in distress between times 1 and 3 in the one visit intervention group than in the control group; however, no significant difference was found between the two visit intervention and the control group. Conclusions: These results are consistent with the aim of the intervention, and they support existing evidence demonstrating that relatively short psychoeducational interventions can help family caregivers who are supporting a dying relative. The sustained benefit during the bereavement period may also have positive resource implications, which should be the subject of future inquiry. 2015 Journal Article http://hdl.handle.net/20.500.11937/20888 10.1002/pon.3610 http://creativecommons.org/licenses/by-nc-nd/3.0/ John Wiley and Sons Ltd fulltext
spellingShingle Hudson, P.
Trauer, T.
Kelly, B.
O'Connor, Moira
Thomas, K.
Zordan, R.
Summers, M.
Reducing the psychological distress of family caregivers of home based palliative care patients: Longer term effects from a randomised controlled trial
title Reducing the psychological distress of family caregivers of home based palliative care patients: Longer term effects from a randomised controlled trial
title_full Reducing the psychological distress of family caregivers of home based palliative care patients: Longer term effects from a randomised controlled trial
title_fullStr Reducing the psychological distress of family caregivers of home based palliative care patients: Longer term effects from a randomised controlled trial
title_full_unstemmed Reducing the psychological distress of family caregivers of home based palliative care patients: Longer term effects from a randomised controlled trial
title_short Reducing the psychological distress of family caregivers of home based palliative care patients: Longer term effects from a randomised controlled trial
title_sort reducing the psychological distress of family caregivers of home based palliative care patients: longer term effects from a randomised controlled trial
url http://hdl.handle.net/20.500.11937/20888