Understanding primary carers' occupational adaption and engagement

Background/aim: Primary carers for people with intellectual disability living in remote rural areas experience high demand care commitments that may require them to be available twenty-four hours seven days a week and reduce their access to formal or respite support leaving them little time to engag...

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Main Authors: McDougall, Carmel, Buchanan, Angus, Peterson, Sunila
Format: Journal Article
Published: Wiley-Blackwell Publishing Asia 2013
Subjects:
Online Access:http://hdl.handle.net/20.500.11937/18697
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author McDougall, Carmel
Buchanan, Angus
Peterson, Sunila
author_facet McDougall, Carmel
Buchanan, Angus
Peterson, Sunila
author_sort McDougall, Carmel
building Curtin Institutional Repository
collection Online Access
description Background/aim: Primary carers for people with intellectual disability living in remote rural areas experience high demand care commitments that may require them to be available twenty-four hours seven days a week and reduce their access to formal or respite support leaving them little time to engage in other occupations. The aim of this study was to explore the impact of caring for a person with an intellectual disability living in remote rural farming location on primary carers' occupational engagement. Method: A thematic analysis, using an interpretive phenomenological analysis approach, was conducted on seven in-depth semi-structured interviews of primary carers. Results: Occupational adaptation and engagement, emerging as a primary theme, indicated that primary carers' occupations were affected by: limiting opportunity to develop occupations; developing new occupations; adapting occupations; and ceasing occupations. A number of influencing themes, affecting the primary carers' occupational engagement also emerged, including: lifestyle and occupational roles; wellness and health; engaging quality supports; societal and community context; and vision for the future. Conclusion: The results provided an initial understanding of the impact of caring on the primary carers' occupational adaptation and engagement, and a suggestion that clinicians consider using a family-centred approach as an effective and meaningful intervention.
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spelling curtin-20.500.11937-186972017-12-05T01:41:39Z Understanding primary carers' occupational adaption and engagement McDougall, Carmel Buchanan, Angus Peterson, Sunila occupation family rural and remote intellectual disability Background/aim: Primary carers for people with intellectual disability living in remote rural areas experience high demand care commitments that may require them to be available twenty-four hours seven days a week and reduce their access to formal or respite support leaving them little time to engage in other occupations. The aim of this study was to explore the impact of caring for a person with an intellectual disability living in remote rural farming location on primary carers' occupational engagement. Method: A thematic analysis, using an interpretive phenomenological analysis approach, was conducted on seven in-depth semi-structured interviews of primary carers. Results: Occupational adaptation and engagement, emerging as a primary theme, indicated that primary carers' occupations were affected by: limiting opportunity to develop occupations; developing new occupations; adapting occupations; and ceasing occupations. A number of influencing themes, affecting the primary carers' occupational engagement also emerged, including: lifestyle and occupational roles; wellness and health; engaging quality supports; societal and community context; and vision for the future. Conclusion: The results provided an initial understanding of the impact of caring on the primary carers' occupational adaptation and engagement, and a suggestion that clinicians consider using a family-centred approach as an effective and meaningful intervention. 2013 Journal Article http://hdl.handle.net/20.500.11937/18697 10.1111/1440-1630.12076 Wiley-Blackwell Publishing Asia restricted
spellingShingle occupation
family
rural and remote
intellectual disability
McDougall, Carmel
Buchanan, Angus
Peterson, Sunila
Understanding primary carers' occupational adaption and engagement
title Understanding primary carers' occupational adaption and engagement
title_full Understanding primary carers' occupational adaption and engagement
title_fullStr Understanding primary carers' occupational adaption and engagement
title_full_unstemmed Understanding primary carers' occupational adaption and engagement
title_short Understanding primary carers' occupational adaption and engagement
title_sort understanding primary carers' occupational adaption and engagement
topic occupation
family
rural and remote
intellectual disability
url http://hdl.handle.net/20.500.11937/18697