Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome

This study investigates relationships between methyl-CpG-binding protein 2 gene (MECP2) mutation type and speech-language abilities in girls with Rett syndrome. Cross-sectional data on 766 girls, aged 15 years and under, with genetically confirmed Rett syndrome was obtained from the Australian Rett...

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Main Authors: Urbanowicz, A., Downs, Jennepher, Girdler, S., Ciccone, N., Leonard, H.
Format: Journal Article
Published: 2015
Online Access:http://hdl.handle.net/20.500.11937/18407
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author Urbanowicz, A.
Downs, Jennepher
Girdler, S.
Ciccone, N.
Leonard, H.
author_facet Urbanowicz, A.
Downs, Jennepher
Girdler, S.
Ciccone, N.
Leonard, H.
author_sort Urbanowicz, A.
building Curtin Institutional Repository
collection Online Access
description This study investigates relationships between methyl-CpG-binding protein 2 gene (MECP2) mutation type and speech-language abilities in girls with Rett syndrome. Cross-sectional data on 766 girls, aged 15 years and under, with genetically confirmed Rett syndrome was obtained from the Australian Rett Syndrome Database (ARSD) (n=244) and the International Rett Syndrome Phenotype Database (InterRett) (n=522). Relationships between MECP2 mutation type and age of regression in speech-language abilities, and the level of speech-language abilities before and after this regression were investigated. The females had a median age of 4.95 years in the ARSD and 5.25 years in InterRett. The majority (89%, 685/766) acquired speech-language abilities in the form of babble or words at some point in time. Of those who acquired babble or words, 85% (581/685) experienced a regression in these abilities. Those with a p.Arg133Cys mutation were the most likely to use one or more words, prior to (RRR=3.45; 95% CI 1.15-10.41) and after (RRR=5.99; 95% CI 2.00-17.92), speech-language regression. Girls with Rett syndrome vary in their use of speech and language, and in their experience of speech-language regression and these variations are partly explained by genotype.
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spelling curtin-20.500.11937-184072017-09-13T13:47:28Z Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome Urbanowicz, A. Downs, Jennepher Girdler, S. Ciccone, N. Leonard, H. This study investigates relationships between methyl-CpG-binding protein 2 gene (MECP2) mutation type and speech-language abilities in girls with Rett syndrome. Cross-sectional data on 766 girls, aged 15 years and under, with genetically confirmed Rett syndrome was obtained from the Australian Rett Syndrome Database (ARSD) (n=244) and the International Rett Syndrome Phenotype Database (InterRett) (n=522). Relationships between MECP2 mutation type and age of regression in speech-language abilities, and the level of speech-language abilities before and after this regression were investigated. The females had a median age of 4.95 years in the ARSD and 5.25 years in InterRett. The majority (89%, 685/766) acquired speech-language abilities in the form of babble or words at some point in time. Of those who acquired babble or words, 85% (581/685) experienced a regression in these abilities. Those with a p.Arg133Cys mutation were the most likely to use one or more words, prior to (RRR=3.45; 95% CI 1.15-10.41) and after (RRR=5.99; 95% CI 2.00-17.92), speech-language regression. Girls with Rett syndrome vary in their use of speech and language, and in their experience of speech-language regression and these variations are partly explained by genotype. 2015 Journal Article http://hdl.handle.net/20.500.11937/18407 10.1002/ajmg.a.36871 restricted
spellingShingle Urbanowicz, A.
Downs, Jennepher
Girdler, S.
Ciccone, N.
Leonard, H.
Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome
title Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome
title_full Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome
title_fullStr Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome
title_full_unstemmed Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome
title_short Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome
title_sort aspects of speech-language abilities are influenced by mecp2 mutation type in girls with rett syndrome
url http://hdl.handle.net/20.500.11937/18407