Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis

The diagnosis of a chronic progressive condition such as multiple sclerosis (MS) can impact on many aspects of daily life. Living with, and caring for, an individual with such a condition is likely to have emotional and psychological consequences. We carried out semi-structured interviews with nine...

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Main Authors: Heward, K., Gough, B., Molineux, Matthew
Format: Journal Article
Published: Pier Professional Ltd 2011
Online Access:http://hdl.handle.net/20.500.11937/12831
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author Heward, K.
Gough, B.
Molineux, Matthew
author_facet Heward, K.
Gough, B.
Molineux, Matthew
author_sort Heward, K.
building Curtin Institutional Repository
collection Online Access
description The diagnosis of a chronic progressive condition such as multiple sclerosis (MS) can impact on many aspects of daily life. Living with, and caring for, an individual with such a condition is likely to have emotional and psychological consequences. We carried out semi-structured interviews with nine partners and analysed the interview transcripts using grounded theory (Strauss & Corbin, 1998), the phase presented in this article formed part of a larger overall study that explored the impact of living with MS for partners and a family. Our analysis in this phase highlights two core themes centred on identity issues faced by the participants: ‘playing detective’ in order to acquire information and manage the situation; and ‘reshaping identities’ in a shifting context, which reflected the participants' difficulties in reconfiguring important identities (at work and at home). Although previous research has addressed how carers cope, there is a dearth of qualitative literature relating to whether or not partners' identities are affected by taking a central role in caring, including how previous identities are maintained and new ones acquired.
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spelling curtin-20.500.11937-128312017-09-13T15:54:08Z Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis Heward, K. Gough, B. Molineux, Matthew The diagnosis of a chronic progressive condition such as multiple sclerosis (MS) can impact on many aspects of daily life. Living with, and caring for, an individual with such a condition is likely to have emotional and psychological consequences. We carried out semi-structured interviews with nine partners and analysed the interview transcripts using grounded theory (Strauss & Corbin, 1998), the phase presented in this article formed part of a larger overall study that explored the impact of living with MS for partners and a family. Our analysis in this phase highlights two core themes centred on identity issues faced by the participants: ‘playing detective’ in order to acquire information and manage the situation; and ‘reshaping identities’ in a shifting context, which reflected the participants' difficulties in reconfiguring important identities (at work and at home). Although previous research has addressed how carers cope, there is a dearth of qualitative literature relating to whether or not partners' identities are affected by taking a central role in caring, including how previous identities are maintained and new ones acquired. 2011 Journal Article http://hdl.handle.net/20.500.11937/12831 10.5042/scn.2011.0081 Pier Professional Ltd restricted
spellingShingle Heward, K.
Gough, B.
Molineux, Matthew
Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
title Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
title_full Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
title_fullStr Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
title_full_unstemmed Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
title_short Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
title_sort change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
url http://hdl.handle.net/20.500.11937/12831