Utility of routine data sources for feedback on the quality of cancer care: An assessment based on clinical practice guidelines

Background: Not all cancer patients receive state-of-the-art care and providing regular feedbackto clinicians might reduce this problem. The purpose of this study was to assess the utility of variousdata sources in providing feedback on the quality of cancer care.Methods: Published clinical practice...

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Main Authors: Coory, M., Thompson, B., Baade, P., Fritschi, Lin
Format: Journal Article
Published: BioMed Central 2009
Online Access:http://hdl.handle.net/20.500.11937/11346
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author Coory, M.
Thompson, B.
Baade, P.
Fritschi, Lin
author_facet Coory, M.
Thompson, B.
Baade, P.
Fritschi, Lin
author_sort Coory, M.
building Curtin Institutional Repository
collection Online Access
description Background: Not all cancer patients receive state-of-the-art care and providing regular feedbackto clinicians might reduce this problem. The purpose of this study was to assess the utility of variousdata sources in providing feedback on the quality of cancer care.Methods: Published clinical practice guidelines were used to obtain a list of processes-of-care ofinterest to clinicians. These were assigned to one of four data categories according to theiravailability and the marginal cost of using them for feedback.Results: Only 8 (3%) of 243 processes-of-care could be measured using population-based registryor administrative inpatient data (lowest cost). A further 119 (49%) could be measured using a coreclinical registry, which contains information on important prognostic factors (e.g., clinical stage,physiological reserve, hormone-receptor status). Another 88 (36%) required an expanded clinicalregistry or medical record review; mainly because they concerned long-term management ofdisease progression (recurrences and metastases) and 28 (11.5%) required patient interview or audio-taping of consultations because they involved information sharing between clinician and patient.Conclusion: The advantages of population-based cancer registries and administrative inpatientdata are wide coverage and low cost. The disadvantage is that they currently contain informationon only a few processes-of-care. In most jurisdictions, clinical cancer registries, which can be usedto report on many more processes-of-care, do not cover smaller hospitals. If we are to providefeedback about all patients, not just those in larger academic hospitals with the most developeddata systems, then we need to develop sustainable population-based data systems that captureinformation on prognostic factors at the time of initial diagnosis and information on management of disease progression.
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spelling curtin-20.500.11937-113462017-09-13T14:54:24Z Utility of routine data sources for feedback on the quality of cancer care: An assessment based on clinical practice guidelines Coory, M. Thompson, B. Baade, P. Fritschi, Lin Background: Not all cancer patients receive state-of-the-art care and providing regular feedbackto clinicians might reduce this problem. The purpose of this study was to assess the utility of variousdata sources in providing feedback on the quality of cancer care.Methods: Published clinical practice guidelines were used to obtain a list of processes-of-care ofinterest to clinicians. These were assigned to one of four data categories according to theiravailability and the marginal cost of using them for feedback.Results: Only 8 (3%) of 243 processes-of-care could be measured using population-based registryor administrative inpatient data (lowest cost). A further 119 (49%) could be measured using a coreclinical registry, which contains information on important prognostic factors (e.g., clinical stage,physiological reserve, hormone-receptor status). Another 88 (36%) required an expanded clinicalregistry or medical record review; mainly because they concerned long-term management ofdisease progression (recurrences and metastases) and 28 (11.5%) required patient interview or audio-taping of consultations because they involved information sharing between clinician and patient.Conclusion: The advantages of population-based cancer registries and administrative inpatientdata are wide coverage and low cost. The disadvantage is that they currently contain informationon only a few processes-of-care. In most jurisdictions, clinical cancer registries, which can be usedto report on many more processes-of-care, do not cover smaller hospitals. If we are to providefeedback about all patients, not just those in larger academic hospitals with the most developeddata systems, then we need to develop sustainable population-based data systems that captureinformation on prognostic factors at the time of initial diagnosis and information on management of disease progression. 2009 Journal Article http://hdl.handle.net/20.500.11937/11346 10.1186/1472-6963-9-84 BioMed Central fulltext
spellingShingle Coory, M.
Thompson, B.
Baade, P.
Fritschi, Lin
Utility of routine data sources for feedback on the quality of cancer care: An assessment based on clinical practice guidelines
title Utility of routine data sources for feedback on the quality of cancer care: An assessment based on clinical practice guidelines
title_full Utility of routine data sources for feedback on the quality of cancer care: An assessment based on clinical practice guidelines
title_fullStr Utility of routine data sources for feedback on the quality of cancer care: An assessment based on clinical practice guidelines
title_full_unstemmed Utility of routine data sources for feedback on the quality of cancer care: An assessment based on clinical practice guidelines
title_short Utility of routine data sources for feedback on the quality of cancer care: An assessment based on clinical practice guidelines
title_sort utility of routine data sources for feedback on the quality of cancer care: an assessment based on clinical practice guidelines
url http://hdl.handle.net/20.500.11937/11346