Thalassaemia: Level of awareness among the future health care providers of Malaysia

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internalnotes [1] Galanello R; Origa R. Orphanet J Rare Dis., 2010; 5, 11. Available form: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2893117/pdf/1750-1172-5-11.pdf [2] WHO. Genomic Resource Centre ( GRC ) [Internet]. Human Genetics. p. 4769–4769. Available from: http://www.who.int/genomics/public/geneticdiseases/en/index2.html [3] George E. Med J Malaysia., 2001;56(4),397-400. [4] Muhammad N; Tan JAMA; George E; Ping WL. BMC Public Health [Internet]., 2012, 12(Suppl 2), A29. Available from: http://www.biomedcentral.com/1471-2458/12/S2/A29 [5] Kohne E. Dtsch Arztebl Int., 2011, 108(31–32), 532-540. Available from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3163784/pdf/Dtsch_Arztebl_Int-108-0532.pdf [6] Weatherall DJ; Clegg JB. Bull World Health Organ., 2001,79(8), 704-712. Available from: http://www.who.int/bulletin/archives/79(8)704.pdf?ua=1 [7] Weatherall DJ. Encycl Life Sci., 2001, 1–3. Available form http://web.udl.es/usuaris/e4650869/docencia/segoncicle/genclin98/recursos_classe_(pdf)/revisionsPDF/Thalassaemi as.pdf [8] Steinberg MH; Forget BG; Higgs DR; Weatherall DJ. Disorders of Hemoglobin. Genetics, Pathophysiology, and Clinical Management. [Internet]. Second Edition. Cambridge University Press. Cambridge, 2010. Available from: http://ebooks.cambridge.org/ebook.jsf?bid=CBO9780511596582 [9] Weatherall D. Am J Hum Genet., 2004, 74, 385-392. Available form: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1182250/pdf/AJHGv74p385.pdf [10] Cardoso GL; Takanashi SYL; Guerreiro JF. Genet Mol Biol., 2012, 35, 553–556. Available form http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1415-47572012000400002 [11] Cao A; Galanello R. Genet Med., 2010, 12(2),61–76. Available form: http://www.nature.com/gim/journal/v12/n2/pdf/gim201012a.pdf [12] U.S. Department of Health & Human Services. National Heart Lung and Blood Isnstitute. Explore Thalassemias [Internet]. Available from: http://www.nhlbi.nih.gov/health/health-topics/topics/thalassemia [13] Wong LP; George E; Tan JAMA. BMC Public Health., 2011,11, 193. Available from: http://www.biomedcentral.com/content/pdf/1471-2458-11-193.pdf [14] George E; Khuziah R. Trop Geogr Med. 1984, 36(2), 123-125. [15] Mayo Clinic Staff. Diseases and Conditions Thalassemia [Internet]. Available from: http://www.mayoclinic.org/diseases-conditions/thalassemia/basics/causes/con-20030316 [16] Benz Jr EJ; Berman BW; Tonkonow BL; Coupal E; Coates T; Boxer LA; Altam A; Adams J. J Clin Invest., 1981, 68 (1), 118-126. Available from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC370779/pdf/jcinvest00471- 0134.pdf [17] Peters M; Heijboer H; Smiers F; Giordano PC. BMJ., 2012, 344, e228–e228. Available form: http://www.bmj.com/content/344/bmj.e228.full.pdf+html [18] Modell B; Darlison M. Bull World Health Organ.,2008, 86(6), 480–487. Available form http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2647473/pdf/06-036673.pdf [19] Weatherall D. Indian J Med Res., 2011,134(4), 493-497. Available form http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3237249/ [20] Flint J, Harding RM, Boyce AJ, Clegg JB. Baillieres Clin Haematol., 1998, 11,1-51. Available from: http://ac.els-cdn.com/S0950353698800693/1-s2.0-S0950353698800693-main.pdf?_tid=32f917c6-ba2d-11e4-8482- 00000aacb361&acdnat=1424566582_4282ba26d9d998583e3353b883013a0b [21] Williams TN, Weatherall DJ. Cold Spring Harb Perspect Med., 2012, 2, 1-14. a011692. Available from: http://perspectivesinmedicine.cshlp.org/content/2/9/a011692.full.pdf+html [22] Cao A, Saba L, Galanello R, Rosatelli MC. JAMA [Internet]., 1997,278 (15) :1273–1277. Available from: http://jama.jamanetwork.com/article.aspx?articleid=418396 [23] Vichinsky EP. Ann N Y Acad Sci., 2005, 1054, 18-24. Available form: file:///C:/Users/UDM/Downloads/VICHINSKY-2005-Annals_of_the_New_York_Academy_of_Sciences.pdf [24] WHO. Herediatry Disease Programme. Division of Non-Comminicable Diseases and Health Technology. Cagliari. 1989. Available from: http://whqlibdoc.who.int/hq/1989/WHO_HDP_WG_HA_89.2.pdf [25] Angastiniotis M; Modell B. Ann N Y Acad Sci., 1998, 850, 251-269. Available from: file:///C:/Users/UDM/Downloads/ANGASTINIOTIS_et_al-1998- Annals_of_the_New_York_Academy_of_Sciences.pdf [26] Lahiry P; Al-Attar SA; Hegele RA. Open Hematol J., 2008,2, 5–13. Available from: file:///C:/Users/UDM/Downloads/09e415104549e621af000000.pdf [27] Kukreja A; Khan A; Xian L; Razley A; Rahim Z. Internet J Heal [Internet]., 2004; 1-27. Available from: https://ispub.com/IJH/12/1/8016 [28] Tan JAMA; Lee PC; Wee YC; Tan KL; Mahali NF; George E; Chua KH. J Biomed Biotechnol., 2010. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2943116/pdf/JBB2010-706872.pdf [29] Ministry of Health Malaysia. Management of thalassemia. 2003. Available from: http://www.moh.gov.my/attachments/727.pdf [30] Mirza A; Ghani A; Pal A; Sami A; Hannan S; Ashraf Z; Iqbal S; Malik UZ; Hayat U; Fatmi Z. Hemoglobin., 2013, 37(2), 160-170. doi: 10.3109/03630269.2013.773260. Available from: http://informahealthcare.com/doi/pdf/10.3109/03630269.2013.773260
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spelling 12783 https://intelek.unisza.edu.my/intelek/pages/view.php?ref=12783 https://intelek.unisza.edu.my/intelek/pages/search.php?search=!collection407072 Restricted Document Article Journal image/jpeg inches 96 96 norman 1416 97 97 2016-05-12 11:25:26 725 1416x725 7090-01-FH02-FP-16-05813.jpg UniSZA Private Access Thalassaemia: Level of awareness among the future health care providers of Malaysia Journal of Chemical and Pharmaceutical Research Thalassaemia is a hereditary disorder which results in reduced production of haemoglobin. This disease is a major public health problem. It was reported from Malaysia in 2011 that there were nearly 4,800 registered thalassaemics. The current study was carried out to determine the level of awareness on thalassaemia among the students of Royal College of Medicine Perak, University Kuala Lumpur, Ipoh, Malaysia. This is a cross-sectional study. Students were then distributed a pretested questionnaire about thalassaemia. The results were analyzed using SPSS 17.0. Out of 281 students, 41%, 41% and 18% were pharmacy students, MBBS students and nursing students respectively. Most (72%) of the respondents were female. The mean knowledge score of nursing students was highest 5.39±1.51, out of a maximum of 7, compared to MBBS students 5.18±1.15 and pharmacy students 3.76±1.57. However, the mean attitude score of nursing (2.98±1.14) and MBBS (2.98±1.26) students was highest and same out of maximum of 5, but not much different compared to pharmacy students 2.69±1.25. Male students had higher level of knowledge on thalassaemia compared to female students. However, female students possessed better attitude when compared to male students. Only 8 students (3%) had an excellent knowledge and attitude. Most of them showed high knowledge level but lack of attitude. Although, current study population level of knowledge is not directly proportional to level of attitude. Since Malaysia is a multiracial country with different cultural and religious believe should be carefully taken into consideration for the prevention of thalassaemia. 7 2 896-902 [1] Galanello R; Origa R. Orphanet J Rare Dis., 2010; 5, 11. Available form: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2893117/pdf/1750-1172-5-11.pdf [2] WHO. Genomic Resource Centre ( GRC ) [Internet]. Human Genetics. p. 4769–4769. Available from: http://www.who.int/genomics/public/geneticdiseases/en/index2.html [3] George E. Med J Malaysia., 2001;56(4),397-400. [4] Muhammad N; Tan JAMA; George E; Ping WL. BMC Public Health [Internet]., 2012, 12(Suppl 2), A29. Available from: http://www.biomedcentral.com/1471-2458/12/S2/A29 [5] Kohne E. Dtsch Arztebl Int., 2011, 108(31–32), 532-540. Available from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3163784/pdf/Dtsch_Arztebl_Int-108-0532.pdf [6] Weatherall DJ; Clegg JB. Bull World Health Organ., 2001,79(8), 704-712. Available from: http://www.who.int/bulletin/archives/79(8)704.pdf?ua=1 [7] Weatherall DJ. Encycl Life Sci., 2001, 1–3. Available form http://web.udl.es/usuaris/e4650869/docencia/segoncicle/genclin98/recursos_classe_(pdf)/revisionsPDF/Thalassaemi as.pdf [8] Steinberg MH; Forget BG; Higgs DR; Weatherall DJ. Disorders of Hemoglobin. Genetics, Pathophysiology, and Clinical Management. [Internet]. Second Edition. Cambridge University Press. Cambridge, 2010. Available from: http://ebooks.cambridge.org/ebook.jsf?bid=CBO9780511596582 [9] Weatherall D. Am J Hum Genet., 2004, 74, 385-392. Available form: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1182250/pdf/AJHGv74p385.pdf [10] Cardoso GL; Takanashi SYL; Guerreiro JF. Genet Mol Biol., 2012, 35, 553–556. Available form http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1415-47572012000400002 [11] Cao A; Galanello R. Genet Med., 2010, 12(2),61–76. Available form: http://www.nature.com/gim/journal/v12/n2/pdf/gim201012a.pdf [12] U.S. Department of Health & Human Services. National Heart Lung and Blood Isnstitute. Explore Thalassemias [Internet]. Available from: http://www.nhlbi.nih.gov/health/health-topics/topics/thalassemia [13] Wong LP; George E; Tan JAMA. BMC Public Health., 2011,11, 193. Available from: http://www.biomedcentral.com/content/pdf/1471-2458-11-193.pdf [14] George E; Khuziah R. Trop Geogr Med. 1984, 36(2), 123-125. [15] Mayo Clinic Staff. Diseases and Conditions Thalassemia [Internet]. Available from: http://www.mayoclinic.org/diseases-conditions/thalassemia/basics/causes/con-20030316 [16] Benz Jr EJ; Berman BW; Tonkonow BL; Coupal E; Coates T; Boxer LA; Altam A; Adams J. J Clin Invest., 1981, 68 (1), 118-126. Available from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC370779/pdf/jcinvest00471- 0134.pdf [17] Peters M; Heijboer H; Smiers F; Giordano PC. BMJ., 2012, 344, e228–e228. Available form: http://www.bmj.com/content/344/bmj.e228.full.pdf+html [18] Modell B; Darlison M. Bull World Health Organ.,2008, 86(6), 480–487. Available form http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2647473/pdf/06-036673.pdf [19] Weatherall D. Indian J Med Res., 2011,134(4), 493-497. Available form http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3237249/ [20] Flint J, Harding RM, Boyce AJ, Clegg JB. Baillieres Clin Haematol., 1998, 11,1-51. Available from: http://ac.els-cdn.com/S0950353698800693/1-s2.0-S0950353698800693-main.pdf?_tid=32f917c6-ba2d-11e4-8482- 00000aacb361&acdnat=1424566582_4282ba26d9d998583e3353b883013a0b [21] Williams TN, Weatherall DJ. Cold Spring Harb Perspect Med., 2012, 2, 1-14. a011692. Available from: http://perspectivesinmedicine.cshlp.org/content/2/9/a011692.full.pdf+html [22] Cao A, Saba L, Galanello R, Rosatelli MC. JAMA [Internet]., 1997,278 (15) :1273–1277. Available from: http://jama.jamanetwork.com/article.aspx?articleid=418396 [23] Vichinsky EP. Ann N Y Acad Sci., 2005, 1054, 18-24. Available form: file:///C:/Users/UDM/Downloads/VICHINSKY-2005-Annals_of_the_New_York_Academy_of_Sciences.pdf [24] WHO. Herediatry Disease Programme. Division of Non-Comminicable Diseases and Health Technology. Cagliari. 1989. Available from: http://whqlibdoc.who.int/hq/1989/WHO_HDP_WG_HA_89.2.pdf [25] Angastiniotis M; Modell B. Ann N Y Acad Sci., 1998, 850, 251-269. Available from: file:///C:/Users/UDM/Downloads/ANGASTINIOTIS_et_al-1998- Annals_of_the_New_York_Academy_of_Sciences.pdf [26] Lahiry P; Al-Attar SA; Hegele RA. Open Hematol J., 2008,2, 5–13. Available from: file:///C:/Users/UDM/Downloads/09e415104549e621af000000.pdf [27] Kukreja A; Khan A; Xian L; Razley A; Rahim Z. Internet J Heal [Internet]., 2004; 1-27. Available from: https://ispub.com/IJH/12/1/8016 [28] Tan JAMA; Lee PC; Wee YC; Tan KL; Mahali NF; George E; Chua KH. J Biomed Biotechnol., 2010. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2943116/pdf/JBB2010-706872.pdf [29] Ministry of Health Malaysia. Management of thalassemia. 2003. Available from: http://www.moh.gov.my/attachments/727.pdf [30] Mirza A; Ghani A; Pal A; Sami A; Hannan S; Ashraf Z; Iqbal S; Malik UZ; Hayat U; Fatmi Z. Hemoglobin., 2013, 37(2), 160-170. doi: 10.3109/03630269.2013.773260. Available from: http://informahealthcare.com/doi/pdf/10.3109/03630269.2013.773260
spellingShingle Thalassaemia: Level of awareness among the future health care providers of Malaysia
summary Thalassaemia is a hereditary disorder which results in reduced production of haemoglobin. This disease is a major public health problem. It was reported from Malaysia in 2011 that there were nearly 4,800 registered thalassaemics. The current study was carried out to determine the level of awareness on thalassaemia among the students of Royal College of Medicine Perak, University Kuala Lumpur, Ipoh, Malaysia. This is a cross-sectional study. Students were then distributed a pretested questionnaire about thalassaemia. The results were analyzed using SPSS 17.0. Out of 281 students, 41%, 41% and 18% were pharmacy students, MBBS students and nursing students respectively. Most (72%) of the respondents were female. The mean knowledge score of nursing students was highest 5.39±1.51, out of a maximum of 7, compared to MBBS students 5.18±1.15 and pharmacy students 3.76±1.57. However, the mean attitude score of nursing (2.98±1.14) and MBBS (2.98±1.26) students was highest and same out of maximum of 5, but not much different compared to pharmacy students 2.69±1.25. Male students had higher level of knowledge on thalassaemia compared to female students. However, female students possessed better attitude when compared to male students. Only 8 students (3%) had an excellent knowledge and attitude. Most of them showed high knowledge level but lack of attitude. Although, current study population level of knowledge is not directly proportional to level of attitude. Since Malaysia is a multiracial country with different cultural and religious believe should be carefully taken into consideration for the prevention of thalassaemia.
title Thalassaemia: Level of awareness among the future health care providers of Malaysia
title_full Thalassaemia: Level of awareness among the future health care providers of Malaysia
title_fullStr Thalassaemia: Level of awareness among the future health care providers of Malaysia
title_full_unstemmed Thalassaemia: Level of awareness among the future health care providers of Malaysia
title_short Thalassaemia: Level of awareness among the future health care providers of Malaysia
title_sort thalassaemia: level of awareness among the future health care providers of malaysia