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1860796849919623168
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INTELEK Repository
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Online Access
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https://intelek.unisza.edu.my/intelek/pages/search.php?search=!collection407072
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| date |
2013-03-11 14:56:08
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Restricted Document
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10417
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UniSZA
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1. Pallangyo E & Mayers P. Experiences of female caregivers providing care for PLWH. J Assoc Nurses AIDS Care. 2009;20(6):481- 493. 2. Katapa RS. Caretakers of AIDS patients in rural Tanzania. Int J STD AIDS. 2004;15:673-78. 3. Orner P. Psychosocial impacts on caregivers of people living with AIDS. AIDS Care. 2006;18(3):236- 40. 4. Moore AR, Henry D. Experiences of older informal caregivers to people with HIV/AIDS in Lome, Togo. Ageing Int. 2005;30(2):147-66. 5. Kneipp SM, Castleman JB, Gailor N. Informal caregiving burden: an overlooked aspect of the lives and health of women transitioning from welfare to employment? Public Health Nurs. 2004;21(1):24-31. 6. Land H, Hudson SM, Stiefel B. Stress and depression among HIV�positive and HIV-negative gay and bisexual AIDS caregivers. AIDS Behav. 2003;7(1):41-53. 7. Wight RG, Aneshensel CS, LeBlanc AJ. Stress buffering effects of family support in AIDS care giving. AIDS Care. 2003;15(5):595-613. 8. Chimwaza AF, Watkins SC. Giving care to people with symptoms of AIDS in rural sub-Saharan Africa. AIDS Care.2004;16(7):795-807. 9. Mwinituo PP, Mill JE. Stigma associated with Ghanaian caregivers of AIDS patients. West J Nurs Res. 2006; 28(4):369-82. 10. Mike K. Who cares…for the carers?. J Ren Care. 2010;36(1):16-20. 11. Weitzner MA, Jacobsen PB, Wagner H Jr, Friedland J, Cox C. The caregiver quality of life index cancer (CQOLC) scale, development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Qual Life Res. 1999;8:55-63. 12. Rhee YS, Shin DO, Lee KM, Yu HJ, Kim JW, Kim SO, et al. Korean version of the caregiver quality of life index-cancer (CQOLC-K). Qual Life Res. 2005;14(3):899-904. 13. Tang WR, Tang ST, Kao CY. Psychometric testing of the Caregiver Quality of Life Index�Cancer on a Taiwanese family caregiver sample. Cancer Nurs. 2009;32(3):220-9. 14. Ozer ZC, Firat MZ, Bektas HA. Confirmatory and exploratory factor analysis of the caregiver quality of life index-cancer with Turkish samples. Qual Life Res. 2009;18(7):913-21. 15. Nunnally JC, Bernstein IH. Psychometric theory (3rd edition). Mcgraw-Hill: New York. 1994. 16. Bjordal KA, De Fraeff PM, Fayers E, Hammerlid E, Van Pottelsberghe C, Curran D, et al. A 12 country field study of EORTC QLQ-C30 (version 3.0) and the neck specific module (EORTC QLQ-H&N35) in head and neck patients: EORTC Quality of Life Group. Eur J Cancer. 2000;36(14):1796-1807. 17. Pallant J. SPSS survival manual. (3rd edition). Australia: Open University Press. 2007. 18. Sharp LK, Knight SJ, Nadler R, Albers M, Moran E, Kuzel T, et al. Quality of life in low-income patients with metastatic prostate cancer: Divergent and convergent validity of three instruments. Qual Life Res. 1999;8:461-70. 19. Pirraglia PA, Bishop D, Herman DS, Trisvan E, Lopez RA, Torgersen CS, et al. Caregiver burden and depression among informal caregivers of HIV-infected individuals. J Gen Intern Med. 2005;20:510-14. 20. Roth DL, Perkins M, Wadley VG, Temple EM, Haley WE. Family caregiving and emotional strain: associations with quality of life in a large national sample of middle-aged and older adults. Qual Life Res. 2009;18(6):679-88. 21. Lee SJ, Li L, Jiraphongsa C, Rotheram-Borus, MJ. Caregiver burden of family members of persons living with HIV in Thailand. Int J Nurs Pract. 2010;16:57-63. 22. Coen RF, O’Boyle CA, Coakley D, Lawlor BA. Individual quality of life factors distinguishing low-burden and high-burden caregivers of dementia patients. Dement Geriatr Cogn Disord. 2002;13:164-70. 23. Turner HA & Catania JA. Informal caregiving to persons with AIDS in the United States: Caregiver burden among central city residents eighteen to forty-nine years old. Am J Community Psychol. 1997;25:35-59. 24. Kipp W, Nkosi T, Laing L, & Jhangri G. Care burden and self�reported health status of informal women caregivers of HIV/AIDS patients. AIDS Care. 2006;18(7):694-7. 25. Given B, Wyatt G, Given C, Sherwood P, Gift A, DeVoss D, Rahbar M. Burden and depression among caregivers of patients with cancer at the end of life. Oncol Nurs Forum. 2004;31(6):1105-17. 26. Fuentelsaz-Gallego C, Úbed-Bonet I, Roca-Roger M, Faura-Vendrell T, Salas-Pérez AM, Buisac-González D, et al. Characteristics and quality of life of informal caregivers of patients with AIDS. Enfermeria Clinica, 2006;16(3):137-43. 27. Sansoni J, Riccio P, Vellone E, Piras G. Family dynamics: sleep quality of women caregivers of family members with Alzheimer disease. Prof Inferm. 1999;52(2):73-9. 28. Cupidi C, Realmuto S, Lo Coco G, Cinturino A, Talamanca S, Arnao V, et al. Sleep quality in caregivers of patients with Alzheimer's disease and Parkinson's disease and its relationship to quality of life. Int Psychogeriatr. 2012;24(11):1827-35. 29. Morley D, Dummett S, Peters M, Kelly L, Hewitson P, Dawson J, et al. Factors influencing quality of life in caregivers of people with Parkinson's disease and implications for clinical guidelines. Parkinsons Dis. 2012. 30. Wong DF, Lam AY, Chan SK, Chan SF. Quality of life of caregivers with relatives suffering from mental illness in Hong Kong: roles of caregiver characteristics, caregiving burdens, and satisfaction with psychiatric services. Health Qual Life Outcomes. 2012;10:15. 31. Thomas F. Stigma, fatigue and social breakdown: exploring the impacts of HIV/AIDS on patient and carer well�being in the Caprivi Region, Namibia. Soc Sci Med. 2006;63(12):3174-87. 32. Thomas P, Lalloué F, Preux PM, Hazif�Thomas C, Pariel S, Inscale R, et al. Dementia patients caregivers quality of life: the PIXEL study. Int J Geriatr Psychiatry. 2005;21(1):50-6. 33. Yesilbalkan OU, Ozkutuk N, Ardahan M. Comparison of quality of life of Turkish cancer patients and their family caregivers. Asian Pac J Cancer Prev. 2010;11(6):1575-9. 34. Huang C. Informal female caregivers of older adults with dementia in Taiwan. Californian J Health Promot. 2004;2(3):53-66. 35. Hejoaka F. Care and secrecy: Being a mother of children living with HIV in Burkina Faso. Soc Sci Med. 2009;69(6):869-76. 36. Population and Housing Census of Malaysia, 2010. Department of Statistics Malaysia.
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4387-01-FH02-FPSK-14-00706.pdf
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| person |
Ghita Andersen Othman
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| recordtype |
oai_dc
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https://intelek.unisza.edu.my/intelek/pages/view.php?ref=10417
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10417 https://intelek.unisza.edu.my/intelek/pages/view.php?ref=10417 https://intelek.unisza.edu.my/intelek/pages/search.php?search=!collection407072 Restricted Document Article Journal application/pdf 13 Adobe Acrobat Pro DC 20 Paper Capture Plug-in 1.7 Ghita Andersen Othman 2013-03-11 14:56:08 4387-01-FH02-FPSK-14-00706.pdf UniSZA Private Access HRQoL Profile And Psychometric Properties Assessment Of Caregiver Quality Of Life Instrument Among HIV/AIDS Family Caregivers In Terengganu Malaysian Journal of Psychiatry This preliminary investigation intended to evaluate the healthrelated quality of life (HRQoL) profile of HIV/AIDS family caregivers residing in Kuala Terengganu, Malaysia and to explore the psychometric properties of the Malay Caregiver Quality of Life (MCQoL) questionnaire in this sample. Methods: A convenient sample of family caregivers of HIV/AIDS patients who were aware of the diagnosis was enrolled. They were recruited from the Infectious Disease Clinic, Hospital Sultanah Nur Zahirah, Terengganu. Data was analysed using SPSS16 employing descriptive and non-parametric statistical methods. Results: Thirty respondents consented participation [median age = 43.0 years (range 19.0-81.0); female = 63.3%, married = 70.0%; ≤ primary school qualification = 46.7%; self-employed = 66.7% and rural residents = 56.7%]. Across all patients, the highest domain score was for Disruptiveness (median = 3.3; range 1.4-4.0) while Burden was the lowest (median = 2.3; range 1.0-3.6). As expected, males reported significantly better Financial Concerns and Burden (p<0.05). Interestingly, females and unmarried caregivers exhibited significantly worse quality of sleep compared to their counterparts. However, no significant HRQoL difference was demonstrated among respondents by various education level, living area and duration of care giving. Overall, the instrument tested exhibited evidence of favourable psychometric properties among HIV/AIDS caregivers. Conclusion: In view of such findings, further exploratory studies are required to develop effective and practical interventions which could assist in improving the caregivers’ HRQoL. Besides, the Malay CQoL instrument was considered valid and reliable for this current population but more studies in bigger samples are required to re-confirm its properties. 1. Pallangyo E & Mayers P. Experiences of female caregivers providing care for PLWH. J Assoc Nurses AIDS Care. 2009;20(6):481- 493. 2. Katapa RS. Caretakers of AIDS patients in rural Tanzania. Int J STD AIDS. 2004;15:673-78. 3. Orner P. Psychosocial impacts on caregivers of people living with AIDS. AIDS Care. 2006;18(3):236- 40. 4. Moore AR, Henry D. Experiences of older informal caregivers to people with HIV/AIDS in Lome, Togo. Ageing Int. 2005;30(2):147-66. 5. Kneipp SM, Castleman JB, Gailor N. Informal caregiving burden: an overlooked aspect of the lives and health of women transitioning from welfare to employment? Public Health Nurs. 2004;21(1):24-31. 6. Land H, Hudson SM, Stiefel B. Stress and depression among HIV�positive and HIV-negative gay and bisexual AIDS caregivers. AIDS Behav. 2003;7(1):41-53. 7. Wight RG, Aneshensel CS, LeBlanc AJ. Stress buffering effects of family support in AIDS care giving. AIDS Care. 2003;15(5):595-613. 8. Chimwaza AF, Watkins SC. Giving care to people with symptoms of AIDS in rural sub-Saharan Africa. AIDS Care.2004;16(7):795-807. 9. Mwinituo PP, Mill JE. Stigma associated with Ghanaian caregivers of AIDS patients. West J Nurs Res. 2006; 28(4):369-82. 10. Mike K. Who cares…for the carers?. J Ren Care. 2010;36(1):16-20. 11. Weitzner MA, Jacobsen PB, Wagner H Jr, Friedland J, Cox C. The caregiver quality of life index cancer (CQOLC) scale, development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Qual Life Res. 1999;8:55-63. 12. Rhee YS, Shin DO, Lee KM, Yu HJ, Kim JW, Kim SO, et al. Korean version of the caregiver quality of life index-cancer (CQOLC-K). Qual Life Res. 2005;14(3):899-904. 13. Tang WR, Tang ST, Kao CY. Psychometric testing of the Caregiver Quality of Life Index�Cancer on a Taiwanese family caregiver sample. Cancer Nurs. 2009;32(3):220-9. 14. Ozer ZC, Firat MZ, Bektas HA. Confirmatory and exploratory factor analysis of the caregiver quality of life index-cancer with Turkish samples. Qual Life Res. 2009;18(7):913-21. 15. Nunnally JC, Bernstein IH. Psychometric theory (3rd edition). Mcgraw-Hill: New York. 1994. 16. Bjordal KA, De Fraeff PM, Fayers E, Hammerlid E, Van Pottelsberghe C, Curran D, et al. A 12 country field study of EORTC QLQ-C30 (version 3.0) and the neck specific module (EORTC QLQ-H&N35) in head and neck patients: EORTC Quality of Life Group. Eur J Cancer. 2000;36(14):1796-1807. 17. Pallant J. SPSS survival manual. (3rd edition). Australia: Open University Press. 2007. 18. Sharp LK, Knight SJ, Nadler R, Albers M, Moran E, Kuzel T, et al. Quality of life in low-income patients with metastatic prostate cancer: Divergent and convergent validity of three instruments. Qual Life Res. 1999;8:461-70. 19. Pirraglia PA, Bishop D, Herman DS, Trisvan E, Lopez RA, Torgersen CS, et al. Caregiver burden and depression among informal caregivers of HIV-infected individuals. J Gen Intern Med. 2005;20:510-14. 20. Roth DL, Perkins M, Wadley VG, Temple EM, Haley WE. Family caregiving and emotional strain: associations with quality of life in a large national sample of middle-aged and older adults. Qual Life Res. 2009;18(6):679-88. 21. Lee SJ, Li L, Jiraphongsa C, Rotheram-Borus, MJ. Caregiver burden of family members of persons living with HIV in Thailand. Int J Nurs Pract. 2010;16:57-63. 22. Coen RF, O’Boyle CA, Coakley D, Lawlor BA. Individual quality of life factors distinguishing low-burden and high-burden caregivers of dementia patients. Dement Geriatr Cogn Disord. 2002;13:164-70. 23. Turner HA & Catania JA. Informal caregiving to persons with AIDS in the United States: Caregiver burden among central city residents eighteen to forty-nine years old. Am J Community Psychol. 1997;25:35-59. 24. Kipp W, Nkosi T, Laing L, & Jhangri G. Care burden and self�reported health status of informal women caregivers of HIV/AIDS patients. AIDS Care. 2006;18(7):694-7. 25. Given B, Wyatt G, Given C, Sherwood P, Gift A, DeVoss D, Rahbar M. Burden and depression among caregivers of patients with cancer at the end of life. Oncol Nurs Forum. 2004;31(6):1105-17. 26. Fuentelsaz-Gallego C, Úbed-Bonet I, Roca-Roger M, Faura-Vendrell T, Salas-Pérez AM, Buisac-González D, et al. Characteristics and quality of life of informal caregivers of patients with AIDS. Enfermeria Clinica, 2006;16(3):137-43. 27. Sansoni J, Riccio P, Vellone E, Piras G. Family dynamics: sleep quality of women caregivers of family members with Alzheimer disease. Prof Inferm. 1999;52(2):73-9. 28. Cupidi C, Realmuto S, Lo Coco G, Cinturino A, Talamanca S, Arnao V, et al. Sleep quality in caregivers of patients with Alzheimer's disease and Parkinson's disease and its relationship to quality of life. Int Psychogeriatr. 2012;24(11):1827-35. 29. Morley D, Dummett S, Peters M, Kelly L, Hewitson P, Dawson J, et al. Factors influencing quality of life in caregivers of people with Parkinson's disease and implications for clinical guidelines. Parkinsons Dis. 2012. 30. Wong DF, Lam AY, Chan SK, Chan SF. Quality of life of caregivers with relatives suffering from mental illness in Hong Kong: roles of caregiver characteristics, caregiving burdens, and satisfaction with psychiatric services. Health Qual Life Outcomes. 2012;10:15. 31. Thomas F. Stigma, fatigue and social breakdown: exploring the impacts of HIV/AIDS on patient and carer well�being in the Caprivi Region, Namibia. Soc Sci Med. 2006;63(12):3174-87. 32. Thomas P, Lalloué F, Preux PM, Hazif�Thomas C, Pariel S, Inscale R, et al. Dementia patients caregivers quality of life: the PIXEL study. Int J Geriatr Psychiatry. 2005;21(1):50-6. 33. Yesilbalkan OU, Ozkutuk N, Ardahan M. Comparison of quality of life of Turkish cancer patients and their family caregivers. Asian Pac J Cancer Prev. 2010;11(6):1575-9. 34. Huang C. Informal female caregivers of older adults with dementia in Taiwan. Californian J Health Promot. 2004;2(3):53-66. 35. Hejoaka F. Care and secrecy: Being a mother of children living with HIV in Burkina Faso. Soc Sci Med. 2009;69(6):869-76. 36. Population and Housing Census of Malaysia, 2010. Department of Statistics Malaysia.
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HRQoL Profile And Psychometric Properties Assessment Of Caregiver Quality Of Life Instrument Among HIV/AIDS Family Caregivers In Terengganu
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| summary |
This preliminary investigation intended to evaluate the healthrelated quality of life (HRQoL) profile of HIV/AIDS family caregivers residing in Kuala Terengganu, Malaysia and to explore the psychometric properties of the Malay Caregiver Quality of Life (MCQoL) questionnaire in this sample. Methods: A convenient sample of family caregivers of HIV/AIDS patients who were aware of the diagnosis was enrolled. They were recruited from the Infectious Disease Clinic, Hospital Sultanah Nur Zahirah, Terengganu. Data was analysed using SPSS16 employing descriptive and non-parametric statistical methods. Results: Thirty respondents consented participation [median age = 43.0 years (range 19.0-81.0); female = 63.3%, married = 70.0%; ≤ primary school qualification = 46.7%; self-employed = 66.7% and rural residents = 56.7%]. Across all patients, the highest domain score was for Disruptiveness (median = 3.3; range 1.4-4.0) while Burden was the lowest (median = 2.3; range 1.0-3.6). As expected, males reported significantly better Financial Concerns and Burden (p<0.05). Interestingly, females and unmarried caregivers exhibited significantly worse quality of sleep compared to their counterparts. However, no significant HRQoL difference was demonstrated among respondents by various education level, living area and duration of care giving. Overall, the instrument tested exhibited evidence of favourable psychometric properties among HIV/AIDS caregivers. Conclusion: In view of such findings, further exploratory studies are required to develop effective and practical interventions which could assist in improving the caregivers’ HRQoL. Besides, the Malay CQoL instrument was considered valid and reliable for this current population but more studies in bigger samples are required to re-confirm its properties.
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| title |
HRQoL Profile And Psychometric Properties Assessment Of Caregiver Quality Of Life Instrument Among HIV/AIDS Family Caregivers In Terengganu
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| title_full |
HRQoL Profile And Psychometric Properties Assessment Of Caregiver Quality Of Life Instrument Among HIV/AIDS Family Caregivers In Terengganu
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| title_fullStr |
HRQoL Profile And Psychometric Properties Assessment Of Caregiver Quality Of Life Instrument Among HIV/AIDS Family Caregivers In Terengganu
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| title_full_unstemmed |
HRQoL Profile And Psychometric Properties Assessment Of Caregiver Quality Of Life Instrument Among HIV/AIDS Family Caregivers In Terengganu
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| title_short |
HRQoL Profile And Psychometric Properties Assessment Of Caregiver Quality Of Life Instrument Among HIV/AIDS Family Caregivers In Terengganu
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| title_sort |
hrqol profile and psychometric properties assessment of caregiver quality of life instrument among hiv/aids family caregivers in terengganu
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